Hi I am new here. I have not yet been diagnosed had an ultrasound done on Thursday to rule out a DVT doctor phoned me yesterday with results scan showed a large lymph node which looked very abnormal. Doctor has now urgently referred me to hematology. As before this large lymph node was discovered I have been having problems with shortness of breath feeling very tired some weight loss and itching. I also have some para-aortic lymph nodes which are slightly enlarged which were noted on a recent CTscan I had done. I am trying to think positive that it could be an infection or a autoimmune disease that has not been diagnosed. But I will not know until I have seen the haematologist. My mind at the moment is all over the place trying to keep myself busy so I don't have time to think about it.
Hi and welcome to the Online Community.
I am dropping in past from our Non-Hodgkin lymphoma group. I was diagnosed way back in 1999 with a rare type of NHL so have a good understanding of this journey.
The fact that you are now going to see a Haematologist suggests some type of blood related issue but at this stage it’s all a guess. There are over 80 types of Lymphoma and that does not even touch all the other blood conditions.
This is going to take time but what I can say is blood conditions are very treatable.
Happy to talk more on this thread or over on the NHL Group.
Hi again , follow this link to Lymphoma Action to see what will happen over the next few weeks/months...... yes, this could take months.
You will be asked lots of questions, they will have a look at you, take some more bloods and most likely refer you for another CT/PET scan and with this will arrange for you to have a core biopsy or even a Bone Marrow Biopsy. Only once all this information is put together will you know 100% what this is.......... then they would look at the best way to treat you if required,
Some Haematologists will just refer you directly for a biopsy before that even see you.
Over my first 14 years nothing showed up in any of my bloods.
Could I suggest that you start a record of all the issues you have been having with a time frame so you are ready for when you are asked "have you any questions"
I would also advise you have someone with you as some consultants will fly through stuff and you may well miss what is said.
Always around to help as best as I can.
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