Dad's melanoma diagnosis

FormerMember
FormerMember
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My dad was diagnosed with melanoma yesterday. 

He had what doctor's diagnosed as a cyst on his neck. He was waiting for an appointment to get it removed when it suddenly increased in size and changed colour. 

He went to hospital where they took a biopsy and we got the results yesterday. 

We havn't been told what kind of melanoma he has, or what stage.  He only saw the ENT people yesterday. He has a CT scan booked for Monday, and has an urgent referral for another hospital.

What's the next stages? What is the treatment if they can't operate? I'm worried about where it is, it's on his neck, pretty much on top of his Adam's apple. If they can operate, would that affect his speech? 

  • FormerMember
    FormerMember

    Hi

    I am so very sorry to hear about your dad. It must be a frightful worry for you and your whole family. Welcome to the community where I hope you’ll be able to find people who have experienced something similar and might be able to answer your many, many questions. You definitely chose the right username here!

    I am so very sorry to hear about your dad. It must be a frightful worry for you and your whole family. Welcome to the community where I hope you’ll be able to find people who have experienced something similar and might be able to answer your many, many questions. You definitely chose the right username here!

    First of all can I point you in the direction of our melanoma group. It’s a dedicated group where people who either have or affected by melanoma come together to share experiences.  If you click onto the link I’ve given below you’ll be able to join and start a discussion. Perhaps the easiest way would be to cut and paste your query here.

    https://community.macmillan.org.uk/cancer_types/melanoma/

    It might also be useful to read the information and support Macmillan provides a melanoma. If you have a look on the main information and support section, there is actually masses of it. I don’t want to overwhelm you, so here is a link to the starting information.

    https://www.macmillan.org.uk/cancer-information-and-support/melanoma

    Can I give a quick warning about googling? It’s very easy to get carried away and scare yourself. The most useful piece of advice I’ve had is to take things one step at a time. It’s very early stages for your dad so it’s best to just deal with the thing that’s in front of you right now.

    All the best 

  • FormerMember
    FormerMember

    Hi I was diagnosed just over a year ago ,initially at stage 2  but after having a further operation to remove more skin and some lymph nodes was told it had spread to some of my lymph nodes and was at stage 3a                                                                          I was initially advised to have the rest of my nodes removed although this wouldn’t cure it and after speaking to a specialist cancer nurse who quickly got me an appointment to see an oncologist at Weston Park Sheffield offered me  a 12 month treatment with Trametinib and Dabfrenib which I have just finished .                                                                              The side effects for me were tiredness and nausea which were quite manageable and I even managed to work full time throughout my treatment .so far my scans have come back clear although I am waiting on a CT scan which was cancelled due to the Covid 19 virus along with a couple of more check ups but I am staying positive and healthy.               Try and think positive and get your Dad to weigh up all of his options,there are many more options available now than there was even a couple of years ago .                                       Try and stay strong as I know it will be a scary time for all of you all of you x