Hi all,
I found out I had stage 4 blastoid mantle cell lymphoma in early September last year. I've had 6 x 4 day sessions of Chemo , I had a stem cell transplant on Xmas eve and I have completed 15 radiotherapy sessions. I go for s PET scan on Monday and then see the consultant on Weds for the results. I'm really nervous, I've read stacks of information and a relapse will happen sometimes the initial treatment doesn't even work. If I get the all clear on Weds , I'm going to start a chemo maintenance regime which is approx every two months for two years.
Has any had a similar treatment and how are you reacting to the experience.
Many Thanks
Mike
Hi and welcome to the Online Community, although I am sorry to see you finding us and so sorry to hear about your blood cancer journey.
I had CTCL and have been through two Allo SCTs I do understand what you are going through and yes, my first Allo SCT did not work.
I found talking with people who were on the same type of journey helped a lot so can I direct you to our supportive Mantel Cell Lymphoma and Stem Cell Transplant groups.
Posting in this groups will give you the opportunity to talk with people who know exactly what you are dealing with at the moment.
Follow the link I've created, join the group, then hit ‘start a discussion’ and you are ready to go.
You could then copy and paste the information from this first post into your new discussion or you can just join in with existing ‘Discussions’ by clicking on 'reply'.
i will keep an eye open for you and happy to support you on these groups.
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