Breast cancer

Hi 

Warm welcome to the club no one wants to join, but pleased you found us. We are all either patients or relatives here so we 'get it'

Do come and join us in the very active (and friendly) Breast Group (clickable link).

It has a rolling monthly chemo club discussion for those who are having, or have completed chemo for BC - It is near the top of the list in this link above titled May BC Chemo Club.  There is also a 'Chemo Tips' link in the chemo clubs first message you could also check out.

There is always someone at the same stage of treatment to share the ride with and we have our humorous side too as you will find in the 'Awake' discussion. Do you know yet which chemotherapy drugs you will be having ?

Strangers are only friends you haven't met yet so you have no need to be wary of us bunch of misfits 

Look forward to seeing you our side of the fence, hope this is of some help for now.

Take care, G n' J

EDIT - Lovely of to reply, looks like you have found a 'chemo buddy' already

Hi

Yes, I’m starting chemo next Wednesday, also having 6 cycles. I’ve already had a mastectomy on 27th March. I know what you mean about no one to talk to. I’m finding it difficult not being able to discuss my treatment with anyone face to face at the hospital. There are no clinics at present and I always feel a bit of a nuisance when I phone to speak to someone. I haven’t even seen my surgeon after the operation and have yet to meet the Oncologist.
I'm just finding my way around this forum but there is a May 2020 chemo group in the Breast Cancer bit. That’s for anyone starting chemo this month. 
Best of luck on Friday xxx

How did you get on yesterday, did it go okay - are you feeling alright today?

xx

Hi

Yes it went okay. I was really anxious the few days before. I still haven’t met the Oncologist but the nurses were lovely. There were quite a few other patients having treatment and it was very relaxed. I had a headache afterwards and was quite warm last night but that might have been the weather.

I feel fine today which I wasn’t expecting to do. Even managed a walk this morning.

Good luck tomorrow, let me know how you got on. xx

I had my first chemo last Friday, it was fine. I have a picc line which made it easier to administer. I also am giving the cold cap a whirl, not that I am that optimistic, but my little girl who is 5 is anxious about my hair falling out so I will try it.

i was super flushed afterwards for 24 hours and I was sick the following morning, but I think that was bad planning on my part the day of the chemo - nerves.

Apart from the horrendous headache I’ve been okay, went for a run Tuesday and to be honest feel as normal now - I hope that this is as bad as it gets!?

my next cycle is the 5th June, when is yours?

so pleased you are feeling okay - onwards and upwards xx

Hi

Sorry I should have realised that you were a bit ahead of me, must have Chemo brain already lol it’s difficult trying to keep up with so much going on. I’m so glad you’re feeling okay, I think we’ll be fine now we have an idea of what it’s like. I wasn’t offered the cold cap so expecting to lose my hair in the next week or so. I’ve got hats and scarves ready and a video call this morning about a wig. They normally come out to the hospital but not happening at the moment. It’s really not a good time to get cancer.

Had a rubbish night sleep again last night, think it’s the steroids. I start the Filgrastim injections today for 7 days. Are you on these? Apparently they make your bones ache. Think peoples treatments are different depending on their own situation. I’m having 3 x EC and 3 x T, then Radiotherapy.

My second cycle is 10th June so just behind you. Hope you continue to feel well.

Onwards and upwards xx

Morning!

i have just had my last jab, my husband is needlephobic so he has gone to work with a skip in his step knowing he’s done the last one for this cycle. They are okay and easy to administer, it took us a couple of days to work out the best way as the pump had an automatic guard ejection.

I have also ordered some hats and lots of scarves at home and Pinterest for ideas, I’m not going to go down the wig route at the moment, apparently the real hair ones are amazing, but I’m not sure how I feel about someone else’s hair? Did you get sent a catalogue?

Like you I have three cycles of one type (FEC-T) and then 3 of docetaxyl, the worst part now I’m feeling okay is it seems a huge wait until the next one - I just want to get them over and done with - sooner started sooner finished has been my mantra.

Great day for me today, from Day 1 to end was 106 days and today I’m in double digits!!!

I am fine once I’m asleep, but falling asleep I find really hard, not sure if it’s a busy mind or something else, but I feel I lie awake for ages!

claire x

My husband is also needlephobic so I’m doing my own. Just done the 1st and realised about the ejection pump - after.

Double digits eh, that’s a great way to look at it, congratulations.

Its seems all consuming at the moment but here’s hoping the time flies.

We will get through this.

Take care Margaret xx