Advice for my Mum TKI treatment

Hi and welcome to the online community

I'm very sorry to read that your mum has been diagnosed with kidney cancer which has spread to her lung and bowel. This must be an incredibly stressful time for the whole family not helped by the current coronavirus restrictions.

The online community is divided up into cancer specific groups where you can ask questions, share experiences and get support. Could I suggest that you join the kidney cancer and secondary lung cancer groups as you'll then connect with others who have this type of cancer. 

You may also like to join the family and friends group as it's a safe and supportive place to discuss your worries with others who have a family member living with cancer.

To join any or all of these groups just click on the links I've created and then choose 'join this group' on the pages that open. You can then introduce yourself and post questions after selecting 'start a discussion' and join in with existing conversations by clicking on 'reply'.

I'm also tagging buttercup01 into my reply to you as she looks after the kidney cancer group and might be able to give you some further help.

When you have a minute it would be really useful if you could pop something about your mum's journey so far as it really helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Edit Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

x

Hi , another welcome to the community from me.

If your mum's struggling with side effects, it would be advisable for her to tell either her oncologist or cancer nurse specialist (CNS) as there are meds which can be prescribed to help. The CNS is also there to support patients, so if your mum has one, do urge her to get in with them  

In particular, nausea- tho she may need to try different drugs before finding one that works. For instance, I'm on a drug which is unlicensed in the UK and so is  available for named patients only. But it works for me!

I know had to try different meds before she got one that worked for her nausea. Many of us find that having a regular week's break is enough to stop the nausea for a while and/or the feeling that everything tastes like cardboard - as our taste buds gradually stop working oroperly.

What other side effects is she having? If you let us know there's probably someone in the group who's also had them and can suggest ways of dealing with them.

Altho the side effects can be difficult to deal with at times, they are worth it in terms of the meds working.

Thank you buttercup01 for your reply. This is reassuring and I will pass on to my parents.

Many thanks again x

She is suffering badly from constipation. Do you have any advice or suggestions?

Many thanks

Several ppl have recommended peppermint oil/ tablets for wind. It may help with the constipation too?

Have you joined the Kidney cancer group yet? You'll get more responses if you do.