Hi I am newly diagnosed with acute lymphoblastic leukaemia it’s not even been a week yet and I now find myself in hospital facing 5 weeks of chemo (amongst other things) on my own with no family or friends able to visit due to covid 19, by the way I had that too and was hospitalised for 5 days approx 4 weeks ago. So as you can imagine life has been a rollercoaster for the last month and I don’t know where to start to take it all in!
Hi Torim100 and welcome to the Online Community, although I am sorry to see you finding us and so sorry to hear about your ALL diagnosis.
A blood cancer diagnosis can bring a lot of confusion, stress and many many questions. I have been on my own NHL journey for coming up to 21 years now so do understand the challenges, but the virus has brought even more challenges.
Taking each day at a time is the way forward, try to understand as much about the condition and I found talking with other people who are on the same type of journey can help a lot.
I see you have found our supportive Acute lymphoblastic leukaemia group.
Posting in this group will open up your concerns to a wider group of people who know exactly what you are dealing with at the moment.
Follow the link I've created, join the group, then hit ‘start a discussion’ and you are ready to go.
You could then copy and paste the information from this first post into your new discussion or you can also join in with existing ‘discussions’ by clicking on 'reply'.
Can I also highly recommend our various Macmillan Support Line Services - you can call them free on 0808 808 00 00 This service covers Emotional Support, Practical Information. Clinical Information, Financial Support and Work Guidance mostly open 8.00 to 8.00 but check the link but you may find the service very busy at the moment.
Our Online Information and Support Section is a good place to find information covering cancer diagnosis, treatments and pages covering most types of cancers.
Click here to see how to add details to your profile. It helps everyone to see a little about you and if you're not sure what to write you can take a look at mine by clicking on my username but my journey was rather complicated.
Always around to help out.
Hi Torim100
Sorry you have been diagnosed with ALL it must be a huge shock to you. I was diagnosed back in 2012 and my ALL was successfully treated and I had a stem cell transplant in May 2013.
I found that the first round of chemo ( I was on UKALL 14 trial) wasn't too bad. The isolation was difficult but I was lucky that i could have visitors.
If you have any questions please get in touch with me and feel free to ask. Good luck and keep strong.
Paul
You can speak to someone in confidence by calling Macmillan Support on 0808 808 0000 - 365 days a year 8am to 8pm It's free from mobiles and landlines. The friendly team are waiting to take your call.
