Rare eye cancer - conjunctival malignant melanoma - and spread to pre-auricular lymph node (Stage 3)

FormerMember
FormerMember
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HI,

I was diagnosed with conjunctival malignant melanoma over 4 years ago and recently it spread to one of my lymph nodes in my parotid (salivary) gland. I had a partial superficial parotidectomy to remove the tumour and lymph node (plus others) almost 3 weeks ago. I have been recommended adjuvant immunotherapy for a year but am uncertain as to whether to have this treatment. I am keen to know of any alternative (or integrated/naturopathic) treatments that may be available under the NHS, preferably in London.

Thanks in advance to anyone who may be able to help with my query.

  • Hi and a very warm welcome to the online community

    I'm very sorry to hear that after being diagnosed with conjunctival malignant melanoma four years ago you've now discovered that it has spread to one of your lymph nodes.

    It's natural to want to weigh up the pros and cons of different treatments so can I point you in the direction of the eye cancer group where you can ask questions, share experiences and get support from others with this type of cancer. 

    To join just click on the link I've created and then choose 'join this group' on the page that opens. You can then introduce yourself and post questions after selecting 'start a discussion' and join in with existing conversations by clicking on 'reply'.

    When you have a minute it would be useful if could pop something about your journey so far into your profile as it really helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Edit Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

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