Hello out of my depth

Hiya floss b,

Completely get where you're coming from. I have lymphoma, so a different cancer, but similar response to the hair issue. I ended up cutting my hair at home ( taking photos at different stages) until it was very very short. The hair you lose then is much more manageable. I just couldn't bear losing wads of hair. Also I looked ridiculous in scarves and couldn't afford wigs, so ended up with sunhats - there are loads of really pretty ones online. I wish you peace of mind and a cool haircut xxx

Thank you Izwizz. My husband has clippered my hair very short but it is still getting to me. I have to shake my pillow in the night!! I tried a scarf on Sunday just to stop the shedding, but it didn't really help. Just made me cry all the more.  It is probably just the steroid effects making me emotional. Did your scalp hurt please? The hairs seem to stick in!! Just feeling very alone. I'll try hats. Thank you. xx

Hi floss b and welcome to the Online Community, although I am sorry to see you finding us.

Talking with people who are on the same type of journey can help a lot so am I direct you to our very supportive Breast cancer group.

Posting in this group will open up your concerns to a wider group of people who know exactly what you are going through at the moment.

Follow the link I've created, join the group, then hit ‘start a discussion’ and you are ready to go.

You could then copy and paste the information from this first post into your new discussion or you can also join in with existing ‘discussions’ by clicking on 'reply'.

Can I also highly recommend our various Macmillan Support Line Services - you can call them free on 0808 808 00 00 This service covers Emotional Support, Practical Information. Clinical Information, Financial Support and Work Guidance mostly open 9.00 to 5.00 but check the link but you may find the service very busy at the moment.

Our Online Information and Support Section  is a good place to find information covering cancer diagnosis, treatments and pages covering most types of cancers.

When you feel up to it, it would be useful if could pop something about your journey so far into your profile as it really helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself and if you're not sure what to write you can take a look at mine by clicking on my username but my journey was rather complicated.

All the very best