Getting my life back after chemo

FormerMember
FormerMember
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I was diagnosed with AML Acute Myeloid Leukaemia suddenly in October 2019. I was fine but tired one day, the next day had blood blisters in my mouth, went to my GP, was sent straight to hospital, was admitted immediately. I had a stroke that night and was blue lighted up to Bristol intensive care from Exeter. I was in ICU for 5 days then in Haematology ward for another 5 days before being transferred back to Exeter hospital. I spent the next 6 months receiving strong chemo in hospital. I got home late March and am now on maintenance tablets for 12 months. I was looking forward to the end of hospital treatment so I could get back to my old life, without 3 times weekly hospital visits. But my 'normal' life isn't here anymore, well it is, but I don't seem to be able to fit back into it. I can't look after my animals myself because of my stroke and have to rely on my husband. He is amazing but I want to be able to do it myself. I have no motivation, find it a struggle to get out of bed, don't want to be awake because I can't cope with not being able to do things. Have no motivation. I should be making the most of everything as I don't know how long I have to remain in remission. 
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  • Hi  and welcome to the Online Community, although I am sorry to see you finding us.

    A blood cancer journey can full of stress, confusion and many questions but talking with people who are on the same journey can help a lot so can I highlight our very supportive Acute myeloid  leukaemia

    Posting in this group will open up your concerns to a wider group of people who know exactly what you are going through at the moment.

    Follow the link I've created, join the group then introduce yourself to the group and post questions after selecting 'start a discussion' and you can also join in with existing conversations by clicking on 'reply'.

    As a 20 years blood cancer survivor I do understand the challenges post treatment, you may find this great paper worth a look.

    We also have our Life after cancer group a good place to connect in with.

    I will keep an eye open for you.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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