Hi, I'm new to this online forum. I just need to feel I'm not alone.
Long story short, my mam has recurrent ovarian cancer, things went downhill rapidly from the new year, in and out of hospital with infections. We were told her chemo wasn't working and now she's in a care home with weeks to live..if that.
She spent most of march alone in hospital because we couldn't visit due to Covid 19. She came home and was told the devastating news that she's terminal. Still we couldn't hug or comfort her :( she'd been home a week..precious time lost due to this virus!!
Dad had to make the difficult decision to send her to a care home and it's awful because we can't be there with her..she hates it and she's phoning Dad saying she wants to be at home and he can't cope with it! We're worried about him! Just the thought of her there without us is heartbreaking.
We never got to hug or comfort each other, as she's deteriorating fast I doubt we will!
We all have the guilty feeling of letting her down. Me and my sister managed to go see her through the care home window yesterday, and she wasn't too disorientated. Our hearts are breaking that we can't be together. It's precious time lost due to this virus.
We're all scared and angry. I just wanted to vent xx
Hi and welcome to the Online Community, although I am sorry to see you finding us and so so sorry to hear about your mum and the challenges the family are facing at the moment - so first a ((hug))
The present situation is a nightmare for a lot of family’s who are living the cancer journey at the moment but you have found a safe place to vent but also to get support.
Talking with people who are on the same journey can help a lot so can I highlight our very supportive Carers only, Family and friends and Supporting someone with incurable cancer groups a benefit as you will connect with others supportingfamily through their cancer journey.
Posting in this groups will open up your concerns to a wider group of people who know exactly what you are all going through at the moment.
Follow the links I've created, join the groups then introduce yourself to the group and post questions after selecting 'start a discussion' and you can also join in with existing conversations by clicking on 'reply'.
Can I also highly recommend our various Macmillan Support Line Services - you can call them free on 0808 808 00 00 This service covers Emotional Support, Practical Information. Clinical Information and Financial Support mostly open 9.00 to 5.00 but check the link but you may find the service very busy at the moment.
All the very best.
