Connect to people going through the same

FormerMember
FormerMember
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My mum received a cancer diagnosis stage 4lung cancer just before the Coronavirus hit the UK. So she has been going through chemo alone and the aftermath of that. My dads at home but he has COPd and so can’t do a great deal.  I’m over an hour away with young children and she just wants us to stay away as per the government’s  guidelines.  I’m just scared if the worst happens I’ll never see her again.  Sounds dramatic but I can’t see an end to this and I can’t be there to help her at this hardest of times.  It’s just awful and I’m numb.  Just wondering if anyone’s in the same sort of situation and can think of any ways to help? I call you very day and have tried to suggest games evenings but she just doesn’t feel up to it and I can tell she’s getting really down 

  • Hi  and welcome to the Online community, although I am sorry to see you finding us and so sorry to hear about your ……… mum's diagnosis - this must have been a big shock to you.

    A cancer diagnosis can bring a lot of stress, confusion and many questions and more so during these very challenging times but talking with people who are on the same journey can help a lot so can I highlight our very supportive Lung Cancer Group.

    Posting in this group will open up your concerns to a wider group of people who know exactly what you are going through at the moment. 

    Follow the link I've created, join the group then introduce yourself to the group and post questions after selecting 'start a discussion' and you can also join in with existing conversations by clicking on 'reply'.

    You may also find our Carers only and Family and friends where you can connect with others supporting family through their cancer journey.

    Can I also highly recommend our various Macmillan Support Line Services - you can call them free on 0808 808 00 00 This service covers Emotional Support, Practical Information. Clinical Information, Financial Support and Work Guidance mostly open 8.00 to 8.00 but check the link but you may find the phone lines very busty at the moment.

    You may want to put some information in your profile as this can help a lot. Click here to see how to add details as this helps everyone to see a little about you and how best to reply to you.

    All the very best.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • FormerMember
    FormerMember in reply to Thehighlander

    Thank you so much I will take a look at the these now. 

  • FormerMember
    FormerMember

    Hello Juneflower, I get exactly where you are - this virus is just causing so much heartache, it's tiring wondering whether we are doing the right thing staying away but then wanting to be there to help, to be the shoulder to cry on, to find a laugh in the time of such challenges.  Mum has been told she has a lung tumour which has spread outside the lung cavity to her nerves however 9 weeks down the line we are now waiting for her to have a needle biopsy of her Thyroid to ensure the nodules there aren't cancer too.  This has delayed the final diagnosis/treatment plan/prognosis but I am expecting once we receive the consultation the subject of visitation will weigh heavy on my heart too.  

    Some suggestions for things to do; why not get the littleun's to draw pictures for Granny and Grandad and then share them on your phone, maybe if they are old enough to sing or dance, or just be a little crazy you could video them just being themselves and send that too.  I guess you're already hooked up via video link?  I'm playing scrabble online with mum, she logs in when she feels up to it.  Does your mum have other friends, do they know about her situation, are they able to call her directly to talk.  What about digging out old photo albums and talking pictures of pictures and talking to her about the memories that you have of those moments.

    I don't know, there is no right or wrong answer but lets all hope this virus passes through sooner than later and we manage to keep as many people safe as possible.  Hopefully soon you'll be able to visit outside her house with the kids and they can put their sticky finger prints on the outside of the windows and wave madly at your mum and dad.

    Wishing you, your mum and family all the very best.  Take care xx

  • FormerMember
    FormerMember in reply to FormerMember

    Thank you so much for your message. I’m so sorry to hear about what your going through with your mum too. Sounds like you a month behind us. It’s so awful isn’t it and just all the worse for being at this time where we are unable to go to our loved ones.  Thank you for these suggestions I will definitely try them. She had to rush to hospital yesterday and they suspect Coronavirus but I’m praying hard it’s not that and is just a minor infection. The only time she had been out the house for a month was to chemo and hospital for blood test so I’m really hoping it isn’t Coronavirus. 
    take care and hope you are ok too. Just trying to keep positive at home for the kids x