Hi

FormerMember
FormerMember
  • 10 replies
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Hi everyone  I was diagnosed with chronic  myeloid  leukaemia  off work now for social  isolation  getting  it very hard 

  • Hi and welcome to the Online Community, although I am sorry to see you finding us and so sorry to hear about your diagnosis - this must have been a big shock to you.

    A blood cancer diagnosis can bring a lot of stress, confusion and many questions but talking with people who are on the same journey can help a lot so can I highlight our very supportive Chronic myeloid leukaemia Group helpful.

    Posting in this group will open up your concerns to a wider group of people who know exactly what you are going through at the moment. 

    Follow the link I've created, join the group then introduce yourself to the group and post questions after selecting 'start a discussion' and you can also join in with existing conversations by clicking on 'reply'.

    I was diagnosed wit a rare type of blood cancer over 20 years ago and as I had to have two Stem Cell Transplants I totally understand isolation so 12 weeks for me is not as bad as a total of 18-20 months.

    Go over and set up a post and I am sure folks will come along and help you out.

    You may want to put some information in your profile as this can help a lot. Click here to see how to add details as this helps everyone to see a little about you and how best to reply to you.

    ((HUGS)) from a safe distance.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • FormerMember
    FormerMember in reply to Thehighlander

    Thank you for your message   it's very hard  and you stay safe to 

  • Yes it is hard but you do need to look at this from different prospective - Isolation now will bring you out the other end - its short teem pain for long term health.

    Do join the group and post as you will connect with others.

    It is all about prospective

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • FormerMember
    FormerMember in reply to Thehighlander

    Yes your right there  it's getting  to except it's the hardest  bit 

  • How long have you been on your cancer journey?

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • FormerMember
    FormerMember in reply to Thehighlander

    Hi there over 8yrs havent been off work  that was 2yrs ago..its hard at moment  when your physical  can work and cant with  this virus  wat is going around that's the hardest  bit 

  • I am into my 20th year with my type of blood cancer, so we have developed a mind set that deals with each day as it comes, having been through some very hard treatment we do take each day as it comes and we are happy in the knowledge that the sun does rise every day and from that we build our day.

    Doing things to keep your mind occupied, we have a small back garden that we go out and do some exercises, catch up with old friends on the phone or on line, read lots of books, use Audible for books and we stay away from the news - there is no point in feed anxiety.

    ((hugs))

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • FormerMember
    FormerMember in reply to Thehighlander

    Into 20th year  me ranting  on about  my 8yrs  do you work ? 

  • You can see my story if you hit .

    No. I don't work now. Diagnosed when I was going 44 (1999) and basically lived and worked as though I had the worst skin condition ever (Rare Skin Lymphoma) but by the time I was 55 I had enough and took early retirement from teaching and a few years later it all kicked off at the end of 2013.

    It is a long story but have now been in remission for 3 1/2 years from a condition I was told back in 1999 was incurable and I would never see remission from - there is always hope and a way through regardless of what comes up against us.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • FormerMember
    FormerMember in reply to Thehighlander

     That's terrible I feel for you  .. my way off thinking  when I am out looking  after the elderly  people  it lifts my mind and your seeing  them and chatting  to them  when your at home not able to do that it's very hard  ... I really  shouldn't  think like that when you see other people  with different  health issues  your right there make as most out off every day  that's comes ..wee don't know wats round the corner  ..it was lovely  chatting  you  away  here to get few things  done  you take care keep in touch   ((hugs))