My husband has a gbm grade 4

FormerMember
FormerMember
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Hi, I’m new to this site and have never posted anything before. I’ve been looking at the site for a few months and thought I would join to see if there’s anyone out there in the same position as me. My husband was diagnosed with a gbm brain tumour in jan 2020. I’m 34 and we have 2 children. My husband is 47. I’m heartbroken and finding things so hard. Is there anyone else out there in the same position as me. So scared what’s going to happen as it gets worse. His had chemo and radio and now we’re just waiting for the next step which is more chemo for 6 months. 

  • Hi  and welcome to the Online Community, although I am sorry to see you finding us and so sorry to hear about your husbands diagnosis - this must have been a big shock to you.

    A cancer diagnosis can bring a lot of stress, confusion and many questions but talking with people who are on the same journey can help a lot and I can see that have joined our very supportive Glioblastoma multiforme group.

    Posting in this group will open up your concerns to a wider group of people who know exactly what you are going through at the moment.

    Follow the link I've created then introduce yourself to the group and post questions after selecting 'start a discussion' and you can also join in with existing conversations by clicking on 'reply'.

    You may also find our Carers only, and Family and friends groups a benefit as you will connect with others supporting family through their cancer journey.

    You may want to put some information in your profile as this can help a lot. Click here to see how to add details as this helps everyone to see a little about you and how best to reply to you.

    All the very best.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • Hi and welcome to the online community

    I'm very sorry to hear that your husband has recently been diagnosed with a gbm brain tumour. It must be an incredibly hard time for the whole family.

    I can see that you have already joined the glioblastoma multiforme brain tumour group and posting their will give you the opportunity to ask questions and share experiences with others who have this type of brain tumour.

    You might also benefit from joining the carers only group which is a safe and supportive place to share your worries and emotions as it's only for carers.

    To join just click on the link I've created and then choose 'join this group' on the page that opens. You can then introduce yourself and post questions after selecting 'start a discussion' and join in with existing conversations by clicking on 'reply'.

    When you have a minute it would be useful if could pop something about your journey so far into your profile as it really helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Edit Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

    Sending a virtual (((hug)))

    Community Champion Badge

     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • FormerMember
    FormerMember

    Hi 

    I’m also new to this site , iv done the same and read posts over the last 6 months since my husband was diagnosed with glioblastoma grade 4 he’s had surgery and radiotherapy/ chemotherapy and now more chemotherapy on a monthly basis , it’s a horrendous situation to be in although my husband is 56 we have grown up children but having young children like you must be so hard , I don’t know how we got through the last 6 months but you do somehow, I know exactly how you must feel , my heart breaks for my husband as I watch him trying so hard to be strong , he’s accepted his situation more so than me I’m scared like yourself about what’s to come , a Macmillan palliative nurse came today and she made both of us so comfortable and was a great help in many ways , we didn’t want to get to that stage yet but I’m glad we did , I wish you strength to cope , X x