to cut a long story 2 year ago my nephew was diagnosed with cancer in his jawhe was 17 at the time and started treatment, he then, with the help from some amazing charities was flown over to america so that he get get proton beam therapy, we thought it was all successful, he was asked to ring the bell, since then he has went back and forth for tests which we all thought were clear but about 2 month ago he started getting headaches and after a scan we found out that his cancer is back its called rhabdomyosarcoma and its in the top of his jaw now, the doctor said all they can do is give chemo and radiotherapy and have given him until the end of the year, they have advised him not to have radiotherapy so that he can make the most of his final months and not spend them vomiting, we are all completely heartbroken and just at a total loss as to what we can do, with the whole country practically on lockdown we cant even go and see him for fear of carrying corona virus and passing it on,
Hi and welcome to the Online Community, although I am sorry to see you finding us and so sorry to hear about your nephew's diagnosis - this must have been a big shock to you.
A cancer coming back and being called as incurable can bring a lot of stress, confusion and many questions but talking with people who are on the same journey can help a lot so can I highlight our very supportive Soft tissue sarcomas Group
Posting in this group will open up your concerns to a wider group of people who know exactly what you are going through at the moment.
Follow the link I've created, join the group then introduce yourself to the group and post questions after selecting 'start a discussion' and you can also join in with existing conversations by clicking on 'reply'.
You may also find our Supporting someone with incurable cancer group a benefit as you will connect with others supporting family through their cancer journey.
This Information from the government is all encompassing and is a good guide what to look out for and what you should or should not do and Macmillan have also provided some information and answered some key questions around cancer and coronavirus (COVID-19).
Can I also highly recommend our various Macmillan Support Line Services - you can call them free on 0808 808 00 00 This service covers Emotional Support, Practical Information. Clinical Information, Financial Support and Work Guidance mostly open 8.00 to 8.00 but check the link and you may also find our Ask an Expert section helpful........ but as you will appreciate this service is very busy at the moment.
You may want to put some information in your profile as this can help a lot. Click here to see how to add details as this helps everyone to see a little about you and how best to reply to you.
All the very best and warm ((hugs)) from a distance x
