Hi. I went to the Dr's with a lump in my breast on 25th February and I'm having a mastectomy on the 30th March. The consultants don't feel that they can offer chemotherapy to shrink the mass, due to developing a low immune system in this climate. However, I don't know what treatment I will need following my operation, due to testing on the biopsy still being carried out.... I may get chemotherapy then! Losing my breast isn't such an issue. The issue is that my adult daughter who lives with us has Angelman's Syndrome and I don't want to put her (or myself!!) at risk of becoming ill through not self isolating. Should I stop her carer's coming into the house? Am I going over the top if I do this? The implications of my parner not being able to attend appointments with me isn't as important as keeping the virus away, Talk about bad timing! Help me think retionally around this please.
Hi and welcome to the Online Community, although I am sorry to see you finding us and so sorry to hear about your diagnosis - this must have been a big shock to you.
As you see a cancer diagnosis can bring a lot of stress, confusion and many questions and this has been even more complicated by this new virus.
Talking with with people who are on the same treatment journey can help a lot so can I highlight our very supportive Breast cancer Group
Posting in this group will open up your concerns to a wider group of people who know exactly what you are going through at the moment.
Follow the link I've created, join the group then introduce yourself to the group and post questions after selecting 'start a discussion' and you can also join in with existing conversations by clicking on 'reply'.
You question about your daughter and her careers - it’s all about balance and the need for her to be supported and you not under excessive pressure once you start treatment.
My daughter and son in law run a large care in the home business fir the elderly and it’s been interesting to hear the measures they are taking to ensure that they are protecting there clients and staff at this very difficult time. Talk with her care team and see what they are saying about the extra steps they are taking at this time.
Your daughter sound like she is in the Governments “High Risk” Group see this advice from the government is encompassing and is a good guide what to look out for and what you should or should not do and Macmillan have also provided some information and answered some key questions around cancer and coronavirus (COVID-19).
I have lived with my Lymphoma for over 20 years and so my immune system is not great but worked and lived ok but did have lots of infections so we are basically back into isolation again, but we have had to do this on 2 occasions for 6+ months after my 2 Stem Cell Transplants.
You may want to put some information in your profile as this can help a lot. Click here to see how to add details as this helps everyone to see a little about you and how best to reply to you.
All the very best and ((hugs)) from a distance.
Hi Sue, yes good to get some stuff out in the open and the Community will be a safe place to do this.
At the best of times we would very often say “once you have a treatment plan together the noise between your ears will calm down”..... in these times this unfortunately is going to take just that longer.
Do connect in with the BC group as you will get some great support. As I have a rare blood cancer this new virus is a totally different ball game - so fir me it’s going to be a very low profile fir a few months.
((hugs)) again.
