New to site ,husband has brain tumour

FormerMember over 5 years ago

2 replies
29 subscribers
718 views

It's difficult enough being diagnosed with a brain tumour that's malignant, (husband march 2019), and personality changes are another difficulty to cope with also.I think everyone will agree after the initial shock and emergency surgery ,radiotherapy and chemo ( which has been stopped due to severe side effects),I sit and think this is how it is now ,its not going to go away anytime soon ,just to communicate with others like us would be so nice .thanks.

LWF over 5 years ago

Hi Fifibelle

So sorry to read your first post but you’ll surely find folks here with similar experiences. Firstly, what grade is the tumour what’s it called & whereabouts?

Mine’s Anaplastic Oligdendroglioma Grade 3, left parietal lobe.

Everyone will tell you, & it’s certainly true, that no two cases are the same but I can tell you for example that after 7+ years?

Well, life for me & my wife & ain’t so bad. I hope this helps for a kickoff & feel free to contact us.

Best wishes, Li

FormerMember over 5 years ago

Hi , welcome to the online community in my opinion a great place to “talk” to people with similar experiences, especially in these days when it’s difficult to talk to some others in person. I don’t know if I’ve got this right but I’m thinking you’re saying it’s your husband with the brain tumour. With that in mind and seeing that you have already joined the brain group, I thought I’d point you in the direction of another group for you the carers group they will understand the carers perspective of what you’re going through. I’m putting the link for you to click 9n below to get you there.

https://community.macmillan.org.uk/cancer_experiences/carers_only/discussions

You may want to put some information in your profile as this can help everyone to see a little about you and can help when people answer you. Click here to see how to add some details.

Best wishes to both of you.