Hi,
I have never joined an online community before please be gentle!
First diagnosed in Spring 2016, Cholangiovarcinoma, very seriously ill for 4 months, major surgery Aug 2016, chemotherapy which finished in 2017, in observation mode since then because surgery failed to remove it all.
Bloods started to rise last summer without explanation & no radiological evidence of new disease.
Very significant rise in bloods 5 weeks ago led to urgent CT, PET & MRI scans.
Saw my consultant yesterday who told me there is a new active lesion.
She had arranged for chemo to start on April 1st, in the meantime she will consult with surgeon & radiotherapy about other possible options.
And quite simply I’m a mess!
Added to this is CVirus!
Feels like living in a horror film or a night mare.
Thank you for your time.
Hi and welcome to the Online Community, although I am sorry to see you finding us and so sorry to hear about your diagnosis and you having to go back on the rollercoaster again. I do understand this as I have been on my up and down journey for over 20 years and yes, having cancer during this time is an extra stress.
Talking with people who are on the same journey can help a lot so can I highlight our very supportive Bile duct cancer Group.
Posting in this group will open up your concerns to a wider group of people who know exactly what you are going through at the moment.
Follow the link I've created, join the group then introduce yourself to the group and post questions after selecting 'start a discussion' and you can also join in with existing conversations by clicking on 'reply'.
This site is organised into various support groups so we do have lots of groups that are Cancer specific and also ones that are general Cancer experience groups.
Talking to people face to face can help a lot so check to see if you have any Local Macmillan Support in your area or a Maggie’s Centre as these folks are amazing.
You may want to put some information in your profile as this can help a lot. Click here to see how to add details as this helps everyone to see a little about you and how best to reply to you.
All the very best.
