Due to low platelets I have had my chemo cancelled two weeks in a row, because it is palliative care I am concerned that there is a delay in my treatment and I don’t have time on my side.

Oh mate, i really feel for you. Its difficult being positive isnt it. I was diagnosed with Anal cancer 20/2/20. Plus polyps in my lungs and possible groin cancer too. Because my local hospital dont deal with Anal cancer, ive been referred to The QE hospital in Bham. To date NO ONE HAS BOTHERED from the QE to contact me. Ive been complaining to PALS at current hosp and QE hosp as im worried my caer (which i can touch) is spreading in size - if it attaches to my liver its curtains for me. Surgery isnt an option, shrinkage is my only hope. Ive got more chance of getting corona virus than getting my chemoradiation. Lets try and stay positive eh!? Xxxx

Hi

I am so sorry to hear your chemo has been cancelled. I am living with incurable cancer too and I know what you mean about having something to hang on to. No matter how positive we are, there are times when things get on top of us and we need a moan. I can’t do much other than say “I hear you,” but somehow I know from experience that this helps. So have a good moan and get it out of your system. 

This community is very good for those times when you feel low. There’s always someone who will listen and offer a virtual shoulder. It’s good for the good times too and for generally having someone to talk to, people who know what it feels like. 

You’re welcome to have a moan and leave it at that. But if you’d like some ongoing connection with people, can I suggest you join a couple of our groups? There’s a group for people living with incurable cancer and those with secondary breast cancer. I’ll post the links. Click on them and follow the instructions to join, start a discussion or just have a read. 

https://community.macmillan.org.uk/cancer_experiences/living_with_incurable_cancer/discussions

https://community.macmillan.org.uk/cancer_types/breast-secondary-cancer/

I hope to see you around and get to know you better in incurables! 

xx

Hi

I am so sorry to hear about your situation too. Waiting to hear from hospitals is so tough. Usually things feel a bit better once you have a treatment plan in place but the limbo before then - I wouldn’t wish it on my worst enemy. 

I just read your profile and I see you’re a dog lover. I’m a recent convert having got a puppy for my depressed teenager last autumn. She’s changed my life (the dog, I mean. Well the daughter too...). She’s the dearest thing and gets me out and about and provides companionship. I’m in isolation now as I’m in cancer treatment but I’m still able to walk her. I dread the day I’m told I’m not allowed out with her. 

I’m rabbiting on. I wanted to point you in the direction of the anal cancer group. The folks over there are great and you’ll get lots of support if you joined. Here’s a link:

https://community.macmillan.org.uk/cancer_types/anal-cancer/

If you find yourself in the incurable camp, do have a look at the living with incurable cancer group. I’ve posted that link above. 

Best of luck getting a treatment plan 

xx

Thank you for your response, it helps to know I am not alone but it is extremely frustrating that anyone in this situation is having to wait, never mind not getting any response. 

Thank you Daloni I will definitely follow the links you have kindly posted.

I am a very optimistic person, and I am dealing with the situation in a light hearted and humorous way to try and alleviate the worry of family and friends. it is good to know people in the same situation are here to support you. Maybe I can be of help to them too x

Hi sweety

Thank you so much for your reply!! Ive called my cancer "Norman" cause its easier for friends to talk about it to me lol. Ive had tshirts printed with all sorts #Crazy cancer lady; #shrink Norman etc etc.

As for doggies, well an automatic smile appears on my face when i think of doggies. What breed have you got?? Ive got 2 rescue chihuahuas, Nemo (21) and Harley (12), but i had my baby (cockapoo) last August, Miss Nancy-lulu (9 mnths). Ive never had kids and am widowed to bloody cancer. My Mick was 48 (i was 42) when her died, liver cancer....that was 17yrs ago! So my fur babies are my life xxxxxx

Lovely chatting to you hunny

Hugs and paws

Mary and the furbies xxx

Noodle is a cockapoo and arrived with us in September so very similar to your Nancy lulu. 

You sound a very spirited person despite the hard times you’ve been through and continue to go through. In the phrase that sums up these times, 

Stay strong ! 
xx

Hi

You are going to fit right in over in the incorrigibles, sorry, I mean incurables group

xx