Rituxmab

Hi and welcome to the site do post your question here in the FNHL group

https://community.macmillan.org.uk/cancer_types/follicular_lymphoma/

I had an aggressive type so had to have treatment, if I was in your situation I would be pushing the consultant for time to talk this through especially as its all new. If they are say rituximab only have they told you the stage and grade? was it stage 1 ?

You need to ask why they recommend treatment rather than watch and wait and what benefit do they expect from treatment. 

Often with fnhl people go on watch and wait, as it is a type that can come and go its called waxing and waning, when it flares up or is impacting on quality of life thats when they would normally suggest treatment. Two key points for you just in case they have not been mentioned, first blood cancers are not like solid tumour cancers and many are very treatable and the stage is only used to inform treatment and has no relevance to outcome - I was stage 4b and had 8 rounds of treatment 10 years ago. The other point is those that can think of FNHL as a chronic disease that is only treated when needed, if you can get your head around this it helps as when we are told we have cancer you expect treatment quickly and with your type thats not always necessary.

as any questions in the group and someone will try to answer.

John 

Hi  and welcome to the Online Community, although I am sorry to see you finding us and so sorry to hear about your diagnosis - this must have been a big shock to you.

I am Mike Thehighlander and so am dropping in past from our NHL groups to say hi.

I had Rituximab as part of my treatment and did ok with it see my profile.

A blood cancer diagnosis can bring a lot of stress, confusion and many questions but talking with people who are on the same journey can help a lot so can I highlight our very supportive Follicular lymphoma group.

Posting in this group will open up your concerns to a wider group of people who know exactly what you are going through at the moment.

Follow the link I've created, join the group then introduce yourself to the group and post questions after selecting 'start a discussion' and you can also join in with existing conversations by clicking on 'reply'.

I will keep an eye open for you in the group

Thank you so much for your reply Mike you have had quite a journey And I admire your strength and courage . It has given me a lot of hope and inspiration thank you so much for the welcome I look forward to hearing from you all it makes it easier to travel this journey with people that understand

Hi again.

We all have to walk our very own cancer journey and I admire every journey faced and how folks get through them.

I will keep an eye open for you in the Follicular lymphoma group.