Hi all, I was diagnosed with Stage 4 NHL (Follicular/DLBCL) in October and have had six cycles of R-CHOP and one of Rituximab.
After cycle 7, my oncologist booked a PET scan that showed some new spots in the liver. He started talking about refractory lymphoma and said we needed a biopsy to see which of the two it was and that I would need to go on a trial or have a SCT or some other treatment.
I had an ultrasound to see if they could get an ultrasound guided biopsy done. That showed one spot instead of the three that showed up on the PET scan. And the one spot was in a difficult to access area.
They decided that the other spots may be in the stomach, not the liver, so I had a gastroscopy a week ago to see if they could do a biopsy. They found nothing more than some kidney inflammation, scar tissue and a gallstone -- certainly nothing to biopsy.
Now I have to have the liver biopsy, probably in the next week.
Has anyone had things pop up on PET scans at the end of treatment, or close to the end of treatment, that turned out not to be cancer? I'm hoping that the biopsy just shows inflammation, but I'm not sure what conditions show up on a PET scan. I can't find anything that definitively tells you what sort of liver conditions can light up.
Hi and welcome to the Online Community, although I am sorry to see you finding us.
I am dropping in past from our blood cancer groups and do totally understand the challenges you are facing....... and yes bean there and done the 'False Positives' a number of times..... all good results.
But i see that you joined our very supportive Diffuse large B-cell lymphoma group. So could I ask you to copy and paste this into the group as this will open up your concerns to a wider group of people who know exactly what you are going through at the moment...... and I will give you my thoughts in this new post and keep everything together.
Follow the link I've created then introduce yourself to the group and post your question after selecting 'start a discussion'.
You will also see from my profile that I have had two Allo Stem Cell Transplants with Stem Cells from my big brother so we do also have a very supportive Stem Cell Transplant group as well.
You may want to put some information in your profile as this can help a lot. Click here to see how to add details as this helps everyone to see a little about you and how best to reply to you. You could see my story by hitting my community name.
I will keep an eye open for you.
