Introducing myself & looking for like minding people to chat to!

FormerMember
FormerMember
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I was diagnosed with NSCLC - mets lymph nodes, incurable, inoperable but treatable in 2018. I received a combination of chemo & immunotherapy every 3 weeks for 12 months & am now having immunotherapy only every 3 weeks. My 3 monthly scans show my tumours are ‘stable’ - does anyone suffer from ‘scanxiety’! 

  • Hi and a very warm welcome to the online community

    I'm very sorry to hear about your diagnosis but you've come to the right place to chat to others who understand all about scanxiety!

    The community is divided into different groups which you can join. I'd recommend that you take a look at joining the lung cancer group, where you can share discussions on treatment, etc and also the living with incurable cancer group. Please don't think the latter is all doom and gloom as they talk about all sorts of subjects.

    To join either or both of these groups just click on the links I've created and then choose 'join this group' on the pages that open. You can then introduce yourself and post questions after selecting 'start a discussion' and join in with existing conversations by clicking on 'reply'.

    Although you will be able to join the lung cancer group immediately your request to join the living with incurable cancer group may take a little while to be approved. 

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  • FormerMember
    FormerMember

    Hi Lilie I have reoccuring breast cancer with mets with lungs and before chemo i had it in my liver and kidney.I was offered immunotherapy  trial when I was diagnosed last year in May, plus chemo but I refused the immunotherapy because that meant more waiting and testing but I was in a real bad state with my lungs.Since August I am receiving weekly Paclitaxel.Seems was a good choice because I dont have any tumours in my kidney and liver and my lung nodules keep shrinking and I dont feel the lump in my breast anymore.

    Yes I used have scanxiety first but now I just keep telling myself it must be good and cant do anything about the scan results anyway.I am suffering more from "chemoxiety".

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Janet Thank you for sharing. I was happy to undertake chemo although it was a struggle at times- my sister didn’t get a chance to start her chemo & passed away within weeks of diagnosis. I’m finding I do not suffer from the horrible side effects of chemo now Im only being treated with immunotherapy. I’m managing to exercise more & in fact did a 5k jog/power walk today.