Hi ,I have just been revered for a urgent endoscopy,have been under gp care since December with on going stomach problems,started with abdomen pain also three weeks ago ,over the last two months have now lost over a stone in weight,feeling poorly very scared and anxious can't sleep ,I no this is serious and feel very alone,my body is slowly disappearing in front of me ,when I actually get some treatment I feel it will be to late,so so scared and feeling so alone ,I don't no where to turn .
Hi and welcome to the Online Community, although I am sorry to see you finding us and so sorry to hear about the unknown journey you are on.
The 'what if's' are hard but until you have clear information you can't jump to any conclusions and in reality all the stress in the world will not change what you will eventually be told.
Waiting for a diagnosis can bring a lot of stress, confusion and many questions but talking with people who have been on the same journey can help a lot.
I see that you have joined a number of our support groups so why not put up a post in some of them as this will open up your concerns to a wider audience who know exactly what you are going through at the moment.
Just click on the groups you have joined and introduce yourself and post questions after selecting 'start a discussion' and join in with existing conversations by clicking on 'reply'.
Can I also highly recommend our various Macmillan Support Line Services - you can call them free on 0808 808 00 00 This service covers Emotional Support, Practical Information. Clinical Information, Financial Support and Work Guidance mostly open 8.00 to 8.00 but check the link.
Our Online Information and Support Section is a good place to find information covering cancer diagnosis, treatments and pages covering most types of cancers.
Talking to people face to face can help a lot so check to see if you have any Local Macmillan Support in your area or a Maggie’s Centre as these folks are amazing.
All the very best.
Thank you so much for your kind comments and suggestions to help me,I have spoken a number of times to Macmillan on the phone they have been supportive and helpful ,having to wait for testing to be done has been along process at my local GP and once I get the appointment for the endoscopy I no things are moving,however the problems I also have had in the abdomen that are on going a referal for urology has been done as routine so can take weeks to be seen I shall ring back to my doctors Monday for urgent,also I do feel a bowel check also should be done ,not feeling well at all and with extreme weight loss over the last two months it has become a real worrying situation,Thank you again for all your suggestions here's hoping it all gets caught in time to get some treatment to help me .
Hi again, good that you found the Macmillan Support Line to be a benefit.
It's good to talk to people face to face so check to see if you have any Local Macmillan Support in your area or a Maggie’s Centre as these folks are amazing.
Nothing wrong in putting your pointy elbows into the doors of the NHS system. As we all know well the NHS is stretched so things do drop between the cracks at times.
If it is any consolation, between my great GP and my Dermatologists it took 21 months, 2 Its and 6 biopsies to get the exact type of blood cancer I had.....but ti was rather rare.
Keep us up to date and we are always around to help ((hugs))
Hi sadly scared I have just read your post, and would like to welcome you to this community.I have found this site to be very helpful and positive.You can read my profile and you will see i dont have the same health issues as you ,but i understand the feeling of being alone in this dreadful situation.I too am waiting for tests to be completed and knowing in my own head and body that there is something serious going on with me, and i am anxious that its to late for any treatment to work for me too,but when you read other peoples posts you will see we all think the same.We are just plain scared and thats normal. As for you dont know where to turn this is the place to turn, you can vent all your feelings here,moan, groan scream and shout we are all in the same boat.Read other peoples posts and you will see you are not alone.I have cried buckets over the last 2 weeks,and will probably do the same for the next 2 weeks till i get all my tests done.And as for how long have i got left,and will i get to see my kids grow up,we all have those thoughts its human nature. All you can do for now is keep calm you Take careXx
Thank you for your thoughts and kind words ,after reading a lot of posts on this site I realise I'm not the only one who is feel I g frightened and scared about what the future holds,always waiting for tests to be booked and done is so hard when you no your not feeling as you should getting no better,trying to cope daily with the pain and sicky feeling continuous anxiety and having difficulty eating,I am trying to be calmer and think positive ,but we all no it's not easy when it's you going through it,Thank you again for talking to me and telling me how your feeling ,I no now I'm not alone .
Thank you for your reply I am starting to not feel so alone and am glad knowing there are others who are understanding how I'm feeling,waiting is always hard and as time marches on I see my self slowly deteriorating,,I have also spoken to our local Macmillan lady based in our hospital and such a lovely supportive person,I keep saying why me but I no we all think the same ,it's not easy but I no I must try and stay positive and as calm as I can,night time is also worse especially as I seem to feel worse at night time ,I no I can chat through the night if I need to ,Thank you again im praying I get some sleep tonight ,just finding it so hard with pain and anxiety just awful take care .
Hi sadly scared You are more than welcome i agree the nights are always the worse, its the last thing you think about before you eventually go to sleep, and the first thing you think about when you wake up.Keeping calm has been difficult for me too,i have to give myself a good talking to sometimes.We are all doing the best we can in this horrible situation.Take care Xx
I'm sat here at 2.30 in the morning and feeling pretty alone and ill,I have made some chamomile tea and honey to hopefully relax me and be able to go to try and sleep back in bed ,even though I'm waiting for tests to confirm what I already no I'm so frightened,how will my partner and children manage when I'm gone trying to sort out finances and paperwork for them so they don't have to worry ,and it's easy for them to sort out once I'm gone ,omg I must spend time preparing them never enough time,so scared ,will try to go back to bed and sleep,Thank you to such kind people and talking to me when I needed it so much will try to go back to bed .
Hi sadly scared
Hang on in there. I was diagnosed with breast cancer Xmas eve. I didn't know what to do and how to get my head around it.
You need to talk to your friends and family to offload and to the specific department at the hospital who will support you and direct you to the appropriate support network.
It could be something that can be fixed in no time. I have a friend who has lost 4 stone and everyone thought it was 'C' but it turned out he had a hole in his intestines. Medication fixed it.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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