Secondary Breast Cancer

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Hi, Last week I was diagnosed with secondary breast cancer in my bones, liver and lungs. I had been discharged from the hospital 13 months earlier and had been feeling great up until 4 weeks ago - this has come as a bolt out of the blue. Whilst I know that I have been lucky to get this far (I was first diagnosed at 40 and am now 50), I still feel overwhelmed, scared and lonely. I understand there are many other people who go through this...I just don’t know any so would welcome any support.

  • Hi  and welcome to the Online Community, although I am sorry to see you finding us and so sorry to hear about your diagnosis.

    A cancer diagnosis can bring a lot of stress, confusion and many questions but talking with people who are on the same journey can help a lot.

    Can I direct you to this link to our very supportive Breast, secondary cancer group as this will open up your concerns to a wider audience who know exactly what you are going through at the moment.

    To join just click on the link I've created and then choose 'join this group' on the page that opens. You can then introduce yourself and post questions after selecting 'start a discussion' and join in with existing conversations by clicking on 'reply'.

    Can I also highly recommend our various Macmillan Support Line Services - you can call them free on 0808 808 00 00 This service covers Emotional Support, Practical Information. Clinical Information, Financial Support and Work Guidance mostly open 8.00 to 8.00 but check the link.

    We also have our ‘Ask an Expert’. section where you can post questions to our mostly Volunteer Experts but please allow 2 working days to get a reply.

    Talking to people face to face can help a lot so check to see if you have any Local Macmillan Support in your area or a Maggie’s Centre as these folks are amazing.

    All the very best.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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  • FormerMember
    FormerMember

    Hi Blossom

    Sorry to see you joining us here and reading about your unwanted news :-/

    Scared and lonely is very normal when first told but once you get in contact with the ladies in the group linked to below, it should help ease your worries.

    My better half had treatment for this with Chemo & Herceptin etc in 2012 and you tend to think you are out the woods until you realise you never really are Disappointed   Luckily for us her she is still ok but always makes you wonder when a new twinge messes with your head.

    There is a fairly active Secondary Breast Group here (link) you could check out and join to get in contact with others in similar situations.

    One discussion on the page listed is 'Positive Secondary Stories' you could have a read through while you wait replies from any messages you post there.

    Hope this is of some help for now, hugs, G n' J

  • FormerMember
    FormerMember

    I’m so sorry to hear about your diagnosis. That is a lot to take in. Has the hospital discussed next steps with you? Here for you if you need to talk - sending hugs x

  • Thanks so much for your reply-it’s great to know that someone is out there! I am going to follow your advice and join the breast, secondary cancer group.

  • Thank-you it is a great help...I will definitely be taking a look at those positive stories - we all need a bit of hope Blush

  • Hi, thanks for this.  At the moment the plan is 6 cycles of Chemo and Herceptin & Perjeta for as long as i) my body can take it and ii) it’s effective.  Problem is last time I had to stop Herceptin mid-way through so I’m hoping my heart can take it this time Fingers crossed