Merkel Cell Carcinoma

Hi

I'm so sorry to hear how isolated you feel but hopefully you won't feel like that anymore now that you're part of this community.

I did reply to you a couple of months ago when you posted in the skin cancer group but I don't know if you saw my reply. If not clicking here will take you to it.

Sending a supportive ((hug))

Hi Raretez welcome to the forum. Sorry to hear how isolated that you are feeling I confess I have never heard of the type of Cancer you had.

However, as this is so rare as you say maybe the Macmillan Line may be able to help with information in directing you to local support organisations who may be able to offer support as well. They are open 7 days a week 8am -8pm and are very helpful and great listeners. 08088080000.

Sending very best wishes for now and do come back and let us know if you do get information as others may be interested to hear more about this type of Cancer. 

Hello raretez 

i really don’t know how to console you, I just read your heartfelt post and needed to reach out and show you that I care. I too have a rarity  somewhat  in that I have breast cancer and I am a man....but I acknowledge it’s not 2hat you are going through...again I just felt an empathy and wanted to reach out.

im sure the right person will come along soon and direct you to places where people will understand and know your plight.....I just want to send you my regards

Hi 

I was just going to ask if you missed latchbrook's reply...

Her previous link to the Neuroendocrine Group is a good move, there is also the NET's Foundation Org support-charity you could check out.

Connecting with others when you have been diagnosed an uncommon cancer type is an added complication :-/

Hope these replies are of some help, G n' J

Thank you so much for your kind message. I am not PC savvy so it has taken me some time work out how this all works! No replies to my appeal to other MCC sufferers. That shows how rare it is. My only resource is an International MCC forum. The trouble with MCC is that it never goes away and just resurfaces somewhere else in the body. Every waking moment I ask myself 'what is the point?'

Posted a message in reply to you. Hope is shows up somewhere as I really don't know how to navigate this system !

Hi

I'm not sure who you were replying to on the thread but your message has shown up.

The site can be a little tricky to navigate at first so if you need any help just let me know.

x

Villa82