Hi
I'm on a steroid taper and had 3 nasty infections since Xmas that have led me to be hospitalised.
I am home now but seem to just sleep and have no real appitiete. Is that normal?
I was diagnosed (Nov18) and treated for MDS including a stem cell transplant April19
I just don't want to get ill again and am so anxious about that.
X
Hi and welcome to the Online Community, although I am sorry to see you finding us.
I totally know where you are coming from as I have also been through two Allo Stem Cell Transplant with cells from my brother. You can see my journey by hitting my Community name.
Can I direct you to this link to our very supportive Stem Cell Transplant group as this will open up your concerns to a wider audience who know exactly what you are going through at the moment.
Just follow the link I have created then hit the ‘Join This Group’ tab just under the main group name, then go to the 'Start a Discussion' tab and set up your very own Discussion and introduce yourself to the group and ask your questions.
You may find this thread helpful Life after a SCT - A Survivor's Guide where we have tried to collect or post treatment experiences.
Well done getting info in your profile as this helps a lot.
((hugs))
