I had a "total shock" diagnosis of oesophageal cancer 7 weeks ago and begin chemotherapy in 2 days time. My first issue is working out how this "community" works (I don't have experience of social media). Apologies if I get things a bit wrong.
I was given to believe that surgery would be the preferred initial treatment, but tests showed that it would have been too risky (age/fitness). Also, due to my medical history, the preferred chemotherapy drug was discounted and I am to receive the Capecitabine/Carboplatin combination plus radiotherapy. While I of course defer to the medics' judgments, I feel disappointed that my treatments are somehow going to be below optimum. I'd like to l hear of any others in a similar situation.
Mentally, until recently I have been in reasonable spirits but am finding the beginning of the chemo suddenly a daunting prospect.
Hi and a second welcome to the Online Community, although I am sorry to see you finding us.
This link to our very supportive Gullet (oesophagus) cancer group that my friend buttercup01 highlighted.
Just follow the link I have created then hit the ‘Join This Group’ tab just under the main group name, then go to the 'Start a Discussion' tab and set up your very own Discussion and introduce yourself to the group and ask your questions.
You may find our various Macmillan Support Line Services to be helpful - call them on 0808 808 00 00 This free service covers Emotional Support, Practical Information. Clinical Information, Financial Support and Work Guidance mostly open 8.00 to 8.00 but check the link.
All the best.
