Hello a family member has this diagnosis and had debulkIng surgery immediately, 6 weeks radiotherapy/chemo and now is hopefully about to start her 3rd dose of chemo 5/28 days. does anyone have experience of this GBM stage 4? What is likely to be the treatment plan after the 6 rounds of chemo? Thank you.
Hi and welcome to the Online Community, although I am sorry to see you finding us.
A cancer diagnosis can bring a lot of stress, confusion and many questions on all the family but talking with people who are on the same journey can help a lot.
Can I direct you to this link to our very supportive Glioblastoma multiforme group as this will open up your concerns to a wider audience who know exactly what you are going through at the moment.
Just follow the link I have created then hit the ‘Join This Group’ tab just under the main group name, then go to the 'Start a Discussion' tab and set up your very own Discussion and introduce yourself to the group and ask your questions.
You may also find our Carers Only and Friends and Family groups to be good places where you can connect with others support family through their cancer journey but more importantly the carers care for each other.
You may find our various Macmillan Support Line Services to be helpful - call them on 0808 808 00 00 This free service covers Emotional Support, Practical Information. Clinical Information, Financial Support and Work Guidance mostly open 8.00 to 8.00 but check the link.
We also have our ‘Ask an Expert’. section where you can post questions to our mostly Volunteer Experts but please allow 2 working days to get a reply.
Our Online Information and Support Section is a good place to find information covering cancer diagnosis, treatments and pages covering most types of cancers.
Talking to people face to face can help a lot so check to see if you have any Local Macmillan Support in your area or a Maggie’s Centre as these folks are amazing.
When you feel up to it try putting some information in your profile. This really helps others when answering. It also means that you don't have to keep repeating yourself. Just click on YOUR username, select 'Edit Profile'. Put as much or as little in your profile and you can amend it at any time - you can see members profiles by hitting our forum names.
All the very best.
