Just to say Hello

Hi and welcome to the Online Community, although I am sorry to see you finding us.

A cancer diagnosis can indeed bring a lot of stress, confusion and many questions on all the family but talking with people who are on the same journey can help a lot.

Can I first direct you to this link to our very supportive Head and neck cancer group as this will open up your concerns to a wider audience who know exactly what you are going through at the moment.

Just follow the link I have created then hit the ‘Join This Group’ tab just under the main group name, then go to the 'Start a Discussion' tab and set up your very own Discussion and introduce yourself to the group and ask your questions.

As I was the person with the cancer my experience of supporting someone is very limited, although my wife has been amazing over my 20 years. You may also find our Carers Only and Friends and Family groups to be good places where you can connect with others support family through their cancer journey but more importantly the carers care for each other.

You may find our various Macmillan Support Line Services to be helpful - call them on 0808 808 00 00 This free service covers Emotional Support, Practical Information. Clinical Information, Financial Support and Work Guidance mostly open 8.00 to 8.00 but check the link.

Our Online Information and Support Section  is a good place to find information covering cancer diagnosis, treatments and pages covering most types of cancers.

Talking to people face to face can help a lot so check to see if you have any Local Macmillan Support in your area or a Maggie’s Centre as these folks are amazing.

When you feel up to it try putting some information in your profile. This really helps others when answering. It also means that you don't have to keep repeating yourself. Just click on YOUR username, select 'Edit Profile'. Put as much or as little in your profile and you can amend it at any time - you can see members profiles by hitting our forum names.

All the very best

Thank you so very much for your kind reply.

I have read your journey and am in awe of your positivity and resilliance.

I thank you for putting suggetions of groups there for me,  i will look into them. 

I also have a hubby who is in early stages of memory loss which will lead to dementia eventually, so a bit to deal with right now.  I do know that so many people are so much worse than i am, but at the time if diagnosis,  your world stops for a while  until the news sinks in and determination follows. 

I do have a bloggy log of my own where i have a lot of people following sone who have a battle of their own as well. Its called..ROAD  TRIP with  THING! 

So it is helping others as well as myself. 

May i wish you strength and health in your future 

Sorry to hear about your husbands memory loss, this just makes a hard time even more hard but all you can do is put your head down and push on as best as you can - all the very best ((hugs))

Lol.... head down.... haha!!!

See? I do have a sense of humour, thats what really helps.

I am able to turn head to the right but not much to the left and its uncomfortable to try to put head down!  THING has taken over my lymph glands in left side and is growing inside across front of throat, makes it hard to swallow or breathe at times, so sit up to sleep, ear is bad too.

When i was told what i was to have removed and what side effects it will cause, i thought the Elephant man is going to have competition!

Bye for now.  Thank you again 

It helps to have others with similar  to go thru it together. 

Keeping some type of sense of humour does help a lot.

As you have read my profile you will see that although I had a totally diffrent type of cancer I had the same challenges as you with my main problem being the pain as I had lots of trapped nerves so was on high doses of Tramadol and then Morphine and yes was seeing things climbing on the walls ‍

 I do have pictures of my two THINGS I had on my face and neck and elephant man is a good image of what it was like so let’s look for your treatment to take as positive a direction like mine.

I don’t normally post in non blood cancer groups but you can easily find me if you want to talk more in the future.

Highlander ((hugs)) from Inverness x