Tamoxifen and womb thickening!

FormerMember
FormerMember
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Hi everyone, new to this site, so here goes, I will keep it as short as I can and to the point, June 2018 diagnosed with BC ER+/PR+Her-2 Negative, stage 2 grade 2....WLE+Radiotherapy so started Tamoxifen Aug/Sept 2018, doing well, fast forward to April/May 2019, my periods started to show themselves a little bit, spotting here an there, mostly brownish in colour, then they would go all different colours, brown , red, pink, went to GP, she said not to worry it's just your periods coming back....so carried on .....they were irregular I was on/off, they were all over the place, passed quite a large blood clot around Oct, and the periods were becoming more like a periods,, so went back to GP beginning of Dec, she sent me for pelvic ultrasound, got results few days ago, and ive got endometrial thickening, what's that all about?...I'm still having a period right now some days light some days heavy, so I've now had a fast track referral to the gynecologist, and I'm absolutely petrified, some kind words please, oh I'm 43yrs, so very much premenopausal .xx

  • Hi  and welcome to the Online Community, although I am sorry to see you finding us.

    A cancer diagnosis can bring a lot of stress, confusion and questions on but talking with people who are on the same journey can help a lot.

    Can I direct you to this link to our very supportive Womb (uterus) cancer group as this will open up your concerns to a wider audience who know exactly what you are going through at the moment.

    Just follow the link I have created then hit the ‘Join This Group’ tab just under the main group name, then go to the 'Start a Discussion' tab and set up your very own Discussion and introduce yourself to the group and ask your questions.

    This site is organised into various groups so we do have lots of support groups that are Cancer specific  and also ones that are general Cancer experience groups.

    You may find our various Macmillan Support Line Services to be helpful - call them on 0808 808 00 00 This free service covers Emotional Support, Practical Information. Clinical Information, Financial Support and Work Guidance mostly open 8.00 to 8.00 but check the link.

    We also have our ‘Ask an Expert’. section where you can post questions to our mostly Volunteer Experts but please allow 2 working days to get a reply.

    Our Online Information and Support Section  is a good place to find information covering cancer diagnosis, treatments and pages covering most types of cancers.

    Talking to people face to face can help a lot so check to see if you have any Local Macmillan Support in your area or a Maggie’s Centre as these folks are amazing.

    When you feel up to it try putting some information in your profile. This really helps others when answering. It also means that you don't have to keep repeating yourself. Just click on YOUR username, select 'Edit Profile'. Put as much or as little in your profile and you can amend it at any time - you can see members profiles by hitting our forum names.

    All the very best.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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  • FormerMember
    FormerMember

    Hi

    I am so sorry to hear about everything you’ve been through. Of course you’re petrified and thinking the worst. Who wouldn’t in your position? 

    I see Mike has given you the signposts you need to get going. I can only reiterate- do join the womb group. The women there are just great. They’ll hold your virtual hand through the next few weeks while you find out what’s going on. 

    I’m not a doctor or nurse so obviously I can’t give you any medical advice. But I know someone who can. There is a gynae cancer charity called The Eve Appeal. They run an information line where you can get support and information from a specialist gynae cancer nurse. It’s free to use and it’s great. I’m sure they’ll be able to ease your anxiety by giving you the facts. Here’s a link: 

    https://eveappeal.org.uk/supporting-you/ask-eve/

    Good luck!