New Here, Hello Everyone!

FormerMember
FormerMember
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Hello there, 

I wanted to join this online community to be able to express how I am feeling and ask for some advice. 

Here's my story so far.. 

A few weeks ago me and my family found out that my nan has cancer. It is incurable and has spread from her kidney to liver and lungs. I am massively close to her and can't really imagine what my life would be like without her. She's my world. My mom (her daughter) is struggling a lot with all this and I am at times too. Im some days ok, then other days I'm crying like crazy. My nan is going for a biopsy on Thursday and that should give us some more answers. 

I really just wanted to share my story as it is so far. 

Much love x 

  • FormerMember
    FormerMember

    Hello  , I’m sorry to hear about your Nan and how it’s affecting you and your family at the moment. I was very close to my Nan to, although I’m the cancer patient at the moment I fully appreciate how it can be just as hard if not harder on those around the patient. 

    I’ve found it good to express what your feeling rather than keep it bottled up and there’s some advice on how to get support for yourself from the Information and support pages. I will put a link (or two) in that I think you might find helpful.

    https://www.macmillan.org.uk/information-and-support/coping/talking-about-cancer/if-someone-has-cancer

    https://www.macmillan.org.uk/information-and-support/coping/your-emotions/someone-close-has-cancer

    You will see that there’s a section about getting support for you, as it’s hard to look after others when your feeling down yourself, one bit of support mentioned is the online community here. There’s a group called family and friends where you could post in where others will have similar feelings to yourself now or have been through them. I’ve put the link below to help.

    https://community.macmillan.org.uk/cancer_experiences/being_a_relative_/discussions

    it also helps others to answer any post if you put a bit in your profile, you do do that by clicking on your user name, finding the edit button type away and press save. There are hints in the HELP section near the top of the page on the site. 

    When I want to recall my cancer experience either because I think it will be useful for someone later or because I’m not sure I have a question to ask but just need to get things out of my head I’ve written a blog, in the help section it tells you how to do that to if your thinking is going that way. 

    I hope your Nan’s biopsy goes well on Thursday, it can be awful waiting for results, sometimes I’ve just needed a distraction to not think about them. In fact on Monday I played absolute balderdash (that’s a game by the way) with my daughter then Monopoly. 

    You have said your Nan’s cancer is incurable, mine is to but it has been treatable and I’m 4 years in from that incurable diagnosis but mine is a different type of cancer you might want to read the info and support pages for your Nans cancer or join the group discussions for kidney cancer, another link below.

    https://community.macmillan.org.uk/cancer_types/kidney-cancer/discussions

    The community champion who looks after that group is , I’m sure she’d be happy to greet you.

    Best wishes

  • Hi Adams96, KTatHome has given u lots of info to get u started. 

    Sorry I wasn't around to say Hello myself yesterday.

    The kidney cancer group is a very friendly one - like most of the other ones  -  n you will find folk on there who can answer most things re your Nan' s  kidney cancer. 

    One thing to say is that kidney cancer is a slow grower compared with other cancers n many of us have been on medication for years, so tho not curable it IS treatable . Indeed, they are developing more and better drugs all the time. I have personally been living with my cancer for 14 years, and have only just gone back on my meds after a break of 3.5 years.

    Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.
  • Hello ,

    as well as joining the Kidney cancer group u might consider putting a bit in your profile to save u repeating yourself n so folk know where you're coming from as it were .

    Any news from your Nan's biopsy?

    Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.