Hi everyone! Hope you are all as well as you can be. I've had a bit of a world wind few months after finally being diagnosed with Myesthenia Gravis in June after 4 years of issues and a misdiagnosis. Found out a week later I had enlarged Thymus with a mass. Scoot forward to September I had a VATS Thymectomy, 2 weeks ago got the results of Thymoma B2 and B3 cancer. The cells had protrudes the outer edge so no healthy tissue around it.
Had a phone call from the hospital yesterday to say that the MDT meeting had made the decision to refer me for radiotherapy. I am currently waiting a letter for my first consultation.
Any helpful advice and stories of your treatment as in what was your course of treatment would be helpful.
P.S I know everyone's treatment is different.
Hi and a very warm welcome to the online community although I'm sorry you've had to find us.
I can see that you've found and joined the thymus cancer group and I'm sure if you post there you will be able to connect with others who have this type of cancer.
If you're not sure how to get back to the group just click on the link I've created. You can then introduce yourself and post your question after selecting 'start a discussion' and join in with existing conversations by clicking on 'reply'.
When you have a minute it would be really useful if could pop something about your journey so far into your profile as it helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Edit Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
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"Never regret a day in your life, good days give you happiness, bad days give you experience"
