Post lumpectomy for invasive lobular

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I had Invasive lobular diagnosed in July. I had a lumpectomy and had the tumour removed in September. Since then I have felt more fragile and emotional than I did when I was given my diagnosis.

I do feel lucky as the margins were clear and I was told yesterday that I don’t need Chemo, but I feel really disassociated at times. Sometimes I am overwhelmed with emotion and break down sobbing over nothing, other times it’s as if it’s not happening to me . When I compare my case to others it could have been so much worse.

I have fantastic breast care Nurses where I had my op, but I feel so down sometimes I don’t want to ring them and bother them. I am usually a strong willed person but I feel I have to put a brave face on, even though the hubby totally understands.

I assume it’s normal but I hate feeling like this, I stress more about it because it’s so out of character for me to feel So Insecure and anxious.

How have other people dealt with the emotional turbulence of having a diagnosis ? As I read back what I have written I can give myself the advice that I would say to someone else , but actually following advice is another thing.

masalira

FormerMember over 5 years ago

Hi masalira, I’m sorry to hear about your diagnosis and how your currently feeling insecure and anxious. I wanted to welcome you to the community, I have a different cancer to yours but I know that insecure and anxious feeling, and I think after you read your own words back you probably decided for yourself that the feeling is very normal. You mentioned that you have some fantastic nurses but you are hesitating about ringing them which is also a bit normal if you are putting the feelings that they might be busy ahead of the feelings that they are there to help all their patients and have a role in the psychological side as well, and might have local knowledge of support groups or local courses that help with coming to terms with cancer and thinking more positively about going forward.

Here on the community we have groups that it might help you to join and talk about how your feeling, sometimes knowing that what your feeling is normal takes a weight off your mind. There are several breast cancer groups I will link a few so you can have a look yourself and perhaps join and copy and paste your original post in there for support. I’m also including the life after cancer group which is for all cancer groups and about moving on with life.

https://community.macmillan.org.uk/cancer_types/breast-cancer/discussions

https://community.macmillan.org.uk/cancer_experiences/breast_cancer_for_the_under_50s/discussions

https://community.macmillan.org.uk/cancer_experiences/moving_on___post_treatment/discussions

There is an in your area button in the green band at the top of the page when you look at this reply on the site, you can put your post code in and see what’s in your area regarding Macmillan information centres, support groups and Maggies centres, where you can talk to people in person, about how you feel, or use the Macmillan support line 0808 808 0000. I am very sure that the breast group can give you some support as well, they can tell you their experience of how they felt and how they moved on.

it can help people answering you if you complete your profile as when the conversation moves on you might find yourself repeating yourself. To do your profile just click on your user name find the edit button and then save it.

Best wishes to you.

masalira over 5 years ago in reply to FormerMember

Thanks for your reply, you are right as I wrote it and then read it back it helped me to analyse how I am feeling . I will check out the links you have shared with me ,

Masalira x