Information on Oligodendroglioma's

Hi and a very warm welcome to the online community

I'm sorry to hear of your diagnosis but you've come to the right place for information and support. 

I've had a look and found this information from Macmillan on oligodendroglioma for you and if you join the brain tumours group you should be able to share experiences and get support from others who will understand how this affects your life.

To join just click on the link I've created and then choose 'join this group' on the page that opens. You can then introduce yourself or post a question after selecting 'start a discussion' and join in with existing conversations by clicking on 'reply'.

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Hi, really sorry to hear you have an Oligo. Please have a look at my Bio & flick through the posts since ‘13. Whilst mine’s grade 3 & I have had surgery, hopefully some of it will resonate with you? It must be particularly tough having to cope on your own; please feel free to ask any questions. My wife Val & I have plenty of experience of this crappy thing to share by now -& it’s mostly upbeat! (Private message is fine if you’d rather) Hang in there, Lionel 

I went through similar problems around 7 years ago.i have grade 3 oligodendroglioma after operation to diagnose it my speech was slower. I had radiotherapy and chemo tablets every working day for 6 weeks then  after a monthr, I had Stronger chemo tablets for 5 days for the next 6 months.

My tumour was shrunk into the size of a crumb.i recently had another tumour which has been treated with chemo tablets and it shrunk it once again.i know I'm really lucky but I think sharing my story may help you.

I find that positive thinking helps. Joining a local support group was the best thing I did this year. Talking to people that going through cancer and I have a relaxing reflexologuy which is great. 

I've recently started a new hobby of crochet which  is so relaxing and I'm hoping to make a scarf for Christmas. I want to  share that I can't even knit but everything is worth a try lol x

Hi and a very warm welcome to the online community

Thanks for taking the time to share your experience with .

You might like to join the brain tumours group where you can share experiences with others as well as give and receive support.

To join just click on the link I've created and then choose 'join this group' on the page that opens. You can then introduce yourself or post a question after selecting 'start a discussion' and join in with existing conversations by clicking on 'reply'.

When you have a minute it would be really useful if could pop something about your journey so far into your profile as it helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Edit Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

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Thank you for your message. So nice to hear from someone with similar issues.

I am due to start cycle 6 on the 13th November but have decided to tell them I cant continue. I don't believe in giving up but I felt like I was dying during and after cycle 5. I also had a virus but felt too ill. I think I was having more focus seizures as my mouth kept moving on its own  - no muscle control. Not sure whether my oncologist will agree with me but I can not go through that again. It hasn't seemed to shrink it anyway and now I have this new lump which I am waiting for an MRI for.

I had reflexology last week which was amazing and I plan to have it once a fortnight from now on. 

Hope you are ok now and good luck with the knitting. I tried but kept dropping stitches !!!  lol x