In 2015 I was diagnosed with 2 types of Leaukemia and also underwent a stem cell transplant? ..
since ive felt so low and have no energy and never want to do anything ? All I want to do is sleep?
Anyone else feel feel like this?
And another thing that’s always in my head is what the doctors said about a second cancer 5 years down the line, my mind is on overdrive!
Hi and welcome to the Online Community, although I am sorry to see you finding us.
I am Mike Thehighlander and I am dropping in past from our dedicated Stem Cell Transplant (SCT) Support Group.
I have been through two Allo SCTs with stem cells from my brother, first June 2014, second October 2015 but hit my forum name to see my story.
This has been a long journey and much longer than I would have first looked at it to be, so I do understand totally where you are.
Why not come over to our Stem Cell Transplant Forum as this will open up your concerns to a wider audience who know exactly what you are going through at the moment.
Just follow the link above, hitting ‘Join the Group’ tab just under the main group name, then go to the 'Start a Discussion' tab and set up your own Discussion and introduce yourself to the group - you could just copy an paste what you have in this first post.
We also have this ongoing discussion Life after a SCT - A Survivor's Guide that you may find helpful.
When you feel up to it try putting some information in your profile. This really helps others when answering. It also means that you don't have to keep repeating yourself. Just click on YOUR username, select 'Edit Profile'. Put as much or as little in your profile and you can amend it at any time - you can see members profiles by hitting our forum names.
I will keep an eye open for you.
Hi erinwilby
I had a SCT in May 2013 and yes for a couple of years I don’t have much energy either. But now energy levels are good and I can do the same as any other 50 year old (and in some cases much more than a supposedly “heathy” 59 year old)
As for secondary cancers well I am 6 1/2 years post transplant and I am all good. Yes the risk is higher especially for skin cancer etc but you are monitored very regularly.
I don’t worry about it and just get on with life and enjoy it. If it is causing you a real issue have you thought about counselling for your concerns? It may help.
Paul
You can speak to someone in confidence by calling Macmillan Support on 0808 808 0000 - 365 days a year 8am to 8pm It's free from mobiles and landlines. The friendly team are waiting to take your call.
