hi I am new here and seeking some advice
i have just yesterday been sent home from hospital with two nephrostomy bags after a two week stay and very close call to actually not being here I am still currently waiting biopsy results as docs seem unclear but I wanted to search a forum for nephrostomy bags because my first night at home I just couldn’t sleep I couldn’t relax and I’m wondering if anyone had any advice tips for a comfortable as can be sleep with bags on either side on each kidney.
I have had a very tough two weeks with lots of complications and still no answers just assumptions that it could be this type of cancer and that type but my kidneys were failing at quite a high rate and they put stents in but my growth squashed hemnand they didn’t work so henceebtubes for nephrostomy bags on either side were fitted and basically are keeping me alive and making my urine pass as I just was not.
I am 36 and literally have no clue about any of this what I should do shouldn’t do and although the docs were great I just couldn’t take it all in because I was she’ll shocked I went to a and e with vomiting and abdo pains didn’t expect any of what happened to happen and I just seeking advice is anyone can offer any I don’t have any family around or friends I have a partner but he works and I need to learn to adjust to life now and thought this be a perfect place for some help and advice
Hi and welcome to the community at what must be a very worrying time for you. I notice you have joined the bladder group. Just I case you miss it, you have had a reply there with some advice. Click HERE to get to your other post. Best wishes.
