Hi there
i am feeling rather lost at the moment as my granddaughter, who is only 5 and the light in my heart, has recently had to have a brain tumour removed, the results of this have shown that it is a rare and aggressive form of cancer.
Today my daughter and her little daughter, along with the rest of their little family, have travelled up to Bristol’s Children’s hospital to start the first leg of little M’s treatment. She has to have 12months treatment condensed down to 6months, and that’s as long as her lumber puncture results are clear. If they are not then her treatment will change.
My mind is all over the place, I feel helpless as they are 2hrs away and we are used to living so close in proximity to each other.
I am scared for them both, and do not know what to expect and therefore how to help them both.
Any advice would be so helpful.
Hi , I’m so sorry to hear about little M’s diagnosis and treatment, I can only imagine how you feel right now not having been in a similar situation. I hope I can help a little by pointing you in the direction of some information to read and some groups on this site to talk to others who may have some personal experience to help you.
I found this information on children’s cancers, and how it affects the whole family https://www.macmillan.org.uk/information-and-support/audience/childrens-cancer/living-with-cancer#317771
I hope the groups below might also help, click on the link have a look at the discussions and
https://community.macmillan.org.uk/cancer_experiences/being_a_relative_/discussions
Best wishes
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