Hi folks, I'm scared!!
After colo/rec cancer, then both lung mets 2010, 2013 (respectively), now been told the cancer is back in lung.
Anybody got any advice...? Or better still a 'Magic Bullet!!'
All that I can say is that,
"I REFUSE to let this disease define me!!"
love to all,
Gary
Hello , welcome to the online community, I’m sorry to hear of your return of lung mets, I have no magic bullet but I do have a signpost to a few groups of people who will know how you feel. I find chatting with others going through the same or at least understanding the uncertainty that we go through really helps.
This link https://community.macmillan.org.uk/cancer_types/bowel-colon-rectum-cancer/discussions is to the bowel group, and
this link https://community.macmillan.org.uk/cancer_types/lung-secondary-cancer/discussions is to the group affected by a primary cancer that has spread to a lung.
You will find a group button which has many cancer types and cancer experiences, so you may find others that might help, perhaps the emotional issues group, or The Room, or chat, there is also a living with incurable cancer group to talk about living with cancer amongst other things.
I see you have already done your profile so that’s a really great start to being here, it took me a few months to do my first post so well done. I have a different cancer melanoma, no primary found but diagnosed with mets to lymph nodes and then my ovary and after becoming no evidence of disease it has been back in my lymph nodes so not the same but I recognise that disappointment after a scan, at the moment I’m waiting for scan results.
Im not sure if you want to talk about how you feel, how others cope, or what treatment others may have been through it’s entirely up to you bearing the site guidelines in mind (which are in the help section) .
i wish you luck with any new treatment plan you have the uncertainty I’ve found often feels worse than the cancer itself !
Best wishes
Hi thanks for your reply, advice and links!
To be honest I'm not entirely sure that I can contact anyone for a 'deep and meaningful' yet!
Also if I check out trusted websites like McMillan or NHS, it means it becomes REAL.
Best wishes
Gary
Hi , thanks for getting back to me, I must admit I can’t fully know what’s going around your head at the moment or How long you have to wait for a treatment plan. My only advice when your in a waiting period is to find out what helps for you when dealing with uncertainty. My go to place for remembering how to cope is the information and support section pages, so I apologise for giving you yet another link Gary.
https://www.macmillan.org.uk/information-and-support/coping/your-emotions/dealing-with-your-emotions
I found it useful to know that what ever your feeling is normal and there is a section on positive steps. For me I’m not always a big talker so distraction can help to put the anxiety away until it’s the right time to deal with it, for me that’s often walking in the countryside. At some point though I’ve left that those worries have to be aired or they can drag you down and that may be to a friend, a support group, a stranger on here or just a bit of paper writing down things to yourself. But also at the moment for me I’m trying to think of three good things that have happened during the day as well otherwise it can be difficult to go to sleep with the quiet and over thinking. The idea and the reference is in this discussion I started a few days ago.
I would say that cancer treatments have moved on since your original diagnosis, so if you are feeling a bit bleak right now although it natural and inevitable to feel bleak, I sometimes feel you have to acknowledge the bleakness to move on to feeling more positive, or accepting of what treatments or actions that lie ahead. Every body has a wobble every now and then so when you are ready I hope we can help you here.
Best wishes
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