Just diagnosed with metastatic adenocarcinoma in my abdomen plus unknown primary - feeling numb

Hello, I hope you get this message, still trying to figure system out!. I am also stage 4( ovarian cancer) which I did not expect...I was diagnosed at Christmas time.Have just been told that an operation would cause a lot of problems and would not cure this so I am at present on "wait and watch" which I have not experienced yet. I have a case meeting coming up shortly. My husband is very supportive but it has changed a lot of plans and our relationship. I understand what you mean about communicating with others in the same boat and would be very happy to chat with you.  will need to read the guidelines to find out what I do next!

Hugs

P xx

Hi  and welcome to the Online Community, although I am sorry to see you finding us.

Yes, a cancer diagnosis brings a lot of stress and confusion on a family. I have been on my Lymphoma journey for 20 years but talking with people who are on the same journey can help a lot and will reduce the whirlwind wind that is rushing in your head. 

Can I direct you to this links to our Ovarian cancer Forum where you will connect with people who understand the journey you are on. You can ask the folks questions about tests, treatments and what to expect during the months ahead.

Follow the link above and join the group by hitting the ‘Join the Group’ tab just under the main group name and it is worth indicating how you want to receive email notifications when someone answers your posts.

Go to the 'Start a Discussion' tab just under the main group name and set up your own Discussion and introduce yourself to the group - you could just copy an paste what you have in this first post.

We also have lots of other support groups that are Cancer specific and ones that are general Cancer experience  groups.

You may find our various Macmillan Support Line Services to be helpful - call them on 0808 808 00 00This free service covers Emotional Support, Practical Information. Clinical Information, Financial Support and Work Guidance mostly open 8.00 to 8.00 but check the link.

We also have our ‘Ask an Expert’. section where you can post questions to our mostly Volunteer Experts but please allow 2 working days to get a reply.

Our Online Information and Support Section  is a good place to find information covering cancer diagnosis, treatments and pages covering most types of cancers.

Talking to people face to face can help a lot so check to see if you have any Local Macmillan Supportin your area or a Maggie’s Centre as these folks are amazing.

When you feel up to it try putting some information in your profile. This really helps others when answering. It also means that you don't have to keep repeating yourself. Just click on YOUR username, select 'Edit Profile'. Put as much or as little in your profile and you can amend it at any time - you can see members profiles by hitting our forum names.

, you are doing just great and well done putting up this supportive post. You can request to make friends with any member by hitting the members forum name and hit ‘add friend’ just under there name, they will have to then confirm that requests.

All the very best.

Hi  

I am so very sorry to hear about your diagnoses. I think Mike Thehighlander has given you some great starting tips.

Can I also welcome you to the Living with incurable cancer group?

https://community.macmillan.org.uk/cancer_experiences/living_with_incurable_cancer/discussions 

It's not nearly so scary as it sounds. There are a lot of lovely folk over there who are have been where you are now, although with different kinds of cancer. We look after each other, share our experiences, talk about the tricky stuff, have a laugh. One of the threads I enjoy is three good things where we focus on three good things from our day. They can be really simple such a a nice cup of tea or they can be more significant. It doesn't matter. It's about recognising that however hard a day you might have had, there's always something to be grateful for. Sounds daft - but it helps. 

xx

Sorry it's taken me a long time to reply and than you for responding to my post.  I now know my primary is bowel cancer which has spread to the abdomen.  I'm starting chemo on 4 September for 3 months with another 6 months after that if it shows signs of being hot under control. 

How owe are things with you.?