Hello, i'm Michelle I have recently been diagnosed with light chain MGUS, although i'm suspicious that I had it since I was 38 i'm now 44 yrs old, my drs took near enough 2 yrs of bloods every month almost to decide there was something wrong and i had to see a specialist. then when i saw specialist he refused to say what it was he said there was something wrong with my white blood cells etc but not a peep about name, so after 1st app i went and googled and found MGUS did loads more digging in between this i had another app and still no diagnoses carrying on web sites came to light chain MGUS was adamant that's what i had so 25th july 2019 had appointment no one came with me this time and had a different specialist so i asked him what i had and he said we don't like to label it so i said is it MGUS? and i looked a little surprised i went on to say is it light chain MGUS? and he sat back in his chair looking quite surprised by now and he said YES that's right and i quickly said YES! shake my hand dr I've diagnosed something right for a change. I'm a bit of a hypochondriac on the quite I was so happy and relieved i didn't take much in after that i just sat that nodding with this big smile on my face and before i went i shook his hand again and he said i don't usually get this reaction to a diagnoses. I went home told hubby and face timed daughter telling them with this huge smile on my face i felt like i was on a high for 3 days after i felt light slept better my pain was better (have fibromyalia too) and had energy too it was amazing . Well sorry for such a long winded story, but that's my story. thanks for reading me! chelle :)
