Diagnosed with Womb Cancer

FormerMember
FormerMember
  • 5 replies
  • 30 subscribers
  • 1661 views

Hey there, 


I was diagnosed with womb cancer back in February this year and without stating exactly I'm in my late 20's so this was quite unexpected news. The doctor that diagnosed me recommend a hysterectomy, or to try losing weight with having a coil inserted. I chose the coil route mainly due to worrying about the aftermath straight after surgery. However now it's coming closer (next month) to my second biopsy to see how things are going I'm wondering if I made the right decision in terms of what if it has grown, what if it hasn't had an effect etc. 

Back in December 2018 I was taken to hospital due to 3 days of heavy bleeding where I was anaemic and couldn't stand without getting out of breath etc. I was given pills and such to stop the bleeding and iron supplements, checked up on and thankfully sent back home. However even now I still get dizzy spells and feel like I'm weaker than I used to be and that bothers me, like even after the cancers gone will I still feel this way, will I ever get back to "normal"? 

I guess I'm still trying to figure things out and how I should feel, but I don't want to let this get me down. In some ways its a good thing for pushing me to get healthier and shred the weight, I've already lost somewhere over 3 stone which I never would have done without this, so every cloud has it's silver lining I guess. 

  • Hi  and welcome to the Online Community, although I am sorry to see you finding us and so sorry to hear that you have been diagnosed with Womb cancer

    Any cancer diagnosis brings a lot of stress and confusion but talking with people who are on the same journey can help a lot and will reduce the whirlwind wind that is rushing in your head.

    As my cancer journey was rather different you may like to follow this link to our Womb (uterus) cancerforum where you will connect with people who understand the journey you are on. You can ask the folks questions about tests, treatments and what to expect during the months ahead.

    Follow the link above and join the group by hitting the ‘Join the Group’ tab just under the main group name. At this point select how you want to receive email notifications when someone answers your posts.

    You can either go to the 'Start a Discussion' tab just under the main group name. Set up your own Discussion and introduce yourself to the group - you could just copy an paste what you have in this first post. You can also have a look through the various threads by going into the ‘Discussions’ section.

    You may find our various Macmillan Support Line Services to be helpful - call them on 0808 808 00 00 This free service covers Emotional Support, Practical Information. Clinical Information, Financial Support and Work Guidance mostly open 8.00 to 8.00 but check the link.

    We also have our ‘Ask an Expert’. section where you can post questions to our mostly Volunteer Experts but please allow 2 working days to get a reply.

    Our Online Information and Support Section  is a good place to find information covering cancer diagnosis, treatments and pages covering most types of cancers.

    Talking to people face to face can help a lot so check to see if you have any Local Macmillan Support Groups in your area or a Maggie’s Centre as these folks are amazing.

    All the very best.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • FormerMember
    FormerMember in reply to Thehighlander

    Thank you for the help, I shall take a look at the links now and post in the group, I'm hopeful it will calm my nerves a bit Slight smile

  • FormerMember
    FormerMember

    Hi 

    Sorry to hear about your diagnosis , but well done on the weight loss , keep going it’s tough I know !....Due to you bring so young  I was wondering what your symptoms where that put you in front of the gynaecologist? Xx

  • FormerMember
    FormerMember

    Hi

    Goodness you really are too young for this. I was diagnosed with womb cancer five years ago although it was the type that is not hormone sensitive and I was 50. So my experience is probably of limited use to you. 

    Do join the womb cancer forum. There are several younger women there who will be able to share their experiences. They are a lovely supportive lot and will help you feel less alone. 

    I understand there’s been a good deal of success using the coil and weight loss approach, sometimes eliminating the cancer and sometimes holding it back long enough for younger women to consider their options around having children.  Do you understand how the treatment works? Basically womb cancer is fed by too much oestrogen without enough balancing progesterone, so called “unopposed oestrogen”. Fat tissue produces oestrogen so weight loss reduces the amount of oestrogen in your body; meanwhile the coil delivers progesterone. The aim is to create a balance that stops the cancer growing. 

    Did you make the right choice? I’m not a medic so I can’t say and at any rate, time will tell. I think it might help to remember that your doctor would not have offered it if he/she thought it was not a safe route to go. I don’t think “what ifs” are helpful. 

    If you want to talk to an expert I can heartily recommend calling the Ask Eve information line. It’s a nurse led service that’s free to use run by the gynae cancer charity The Eve Appeal. 

    https://eveappeal.org.uk/supporting-you/ask-eve/

    I hope the biopsy brings good news and that you find some virtual pals in the womb cancer group 

    xx

  • FormerMember
    FormerMember

    I got diagnosed with atypical hyperplasia a year and half ago and have had about 10 biopsys in and out of theatre and mri scans and it's not a very nice thing to go through. I was told I had endometrial cancer in December and I have been very upset since as I have lost some weight and been taking provera to help but nothing seams to work. So now my gynycologist is talking about booking me in for hysterectomy and I have no children I have just turned 30. But I have done a round of egg collection to freeze my eggs but it still don't make it any easier. I came here to find people I can talk to that is also going through something similar.