Hi
Just starting to accept but still struggling, hopefully by next Thursday when I sit with the MDT team and my Surgeon can move forward.
Hae a Pet Scan on Tuesday and that will complete the staging.
Had a really bad runny nose and nosebleeds for around a year, saw different Doctors at my local surgery and this was put down to high blood pressure.
Anyway in June thought I was having a stroke of sorts and took myself off to the local hospital.
Was in for 4 days and they were great, just as I was ready to go home 4.30 on Friday afternoon I was told they they wanted to do another CT scan.
Had the scan then was taken to see a consultant in ENT, really nice lady and put tube up both nostrils, after few minutes said would like you to have an endoscopy, so 3 days later go and have day surgery it was called a debunking procedure and to send off a biopsy.
Same as everyone I guess had to wait couple of weeks for results, had a follow up booked for July 12th but received a call asking me to come in on July 8th, so went to meeting, I think I new something was wrong when also introduced to clinical nurse.
Anyway Surgeon started to explain that I had nasopharyngeal carcinoma with adenoid, so really 2 different types or so he explained, he was really good about this and at one stage felt more sorry for him.
Sorry for long post and feel lot better for writing this, the waiting to be honest is not to clever but family being really good, age I think is not to clever an 57 but feel quite fit so see how it all goes
Many thanks
Hi and welcome to the Online Community, although I am sorry to see you finding us and so sorry to hear about your journey to diagnosis. It will sound very familiar to many on the site...... my one took 21 months!!
Any cancer diagnosis brings a lot of stress and confusion but talking with people who are on the same journey can help a lot and will reduce the whirlwind wind that is rushing in your head.
As my cancer journey was rather different you may like to follow this link to our Head and neck cancerforum where you will connect with people who understand the journey you are on. You can ask the folks questions about tests, treatments and what to expect during the months ahead.
Follow the link above and join the group by hitting the ‘Join the Group’ tab just under the main group name. At this point select how you want to receive email notifications when someone answers your posts.
You can either go to the 'Start a Discussion' tab just under the main group name. Set up your own Discussion and introduce yourself to the group - you could just copy an paste what you have in this first post. You can also have a look through the various threads by going into the ‘Discussions’ section.
We do have lots of support groups that are Cancer specific and also ones that are general Cancer experience groups.
You may find our various Macmillan Support Line Services to be helpful - call them on 0808 808 00 00 This free service covers Emotional Support, Practical Information. Clinical Information, Financial Support and Work Guidance mostly open 8.00 to 8.00 but check the link.
We also have our ‘Ask an Expert’. section where you can post questions to our mostly Volunteer Experts but please allow 2 working days to get a reply.
Our Online Information and Support Section is a good place to find information covering cancer diagnosis, treatments and pages covering most types of cancers.
Talking to people face to face can help a lot so check to see if you have any Local Macmillan Support Groups in your area or a Maggie’s Centre as these folks are amazing.
When you feel up to it try putting some information in your profile. This really helps others when answering. It also means that you don't have to keep repeating yourself. Just click on YOUR username, select 'Edit Profile'. Put as much or as little in your profile and you can amend it at any time - you can see members profiles by hitting our forum names.
All the very best.
