Hi,
I am at the start of my journey having collapsed ar work with whar I thought was a stroke but has turned out to be an inoperable tumor.
I am about to undergo a biopsy to determine the type and whether it is benign or malignant and don't really know what to expect from this.
I would be grateful if someone could point me to best group or support sectiom as I could really use some guidance right now.
Many thanks...
Good morning and welcome to the Online Community, although I am sorry to see you finding us and so sorry to hear that you have been diagnosed with a brain tumour.
A cancer diagnosis brings a lot of stress and worry but talking with people who are on the same journey can help a lot and will reduce that whirlwind wind that is rushing in your head.
I have had lots of biopsies over my 20 years but as my cancer journey was rather different you may like to follow this link to our Brain tumours forum where you will connect with people who understand the journey you are on. You can ask the folks questions about tests, treatments and what to expect.
Follow the link above and join the group by hitting the ‘Join the Group’ tab just under the main group name. At this point select how you want to receive email notifications when someone answers your posts.
You can either go to the 'Start a Discussion' tab just under the main group name. Set up your own Discussion and introduce yourself to the group - you could just copy an paste what you have in this first post. Or you could hit the ‘Discussions’ tab and look through the various threads.
You may find our various Macmillan Support Line Services to be helpful - call them on 0808 808 00 00 This free service covers Emotional Support, Practical Information. Clinical Information, Financial Support and Work Guidance mostly open 8.00 to 8.00 but check the link.
We also have our ‘Ask an Expert’ section where you can post questions to our mostly Volunteer Experts but please allow 2 working days to get a reply.
Our Online Information and Support Section is a good place to find information covering cancer diagnosis, treatments and pages covering most types of cancers.
Talking to people face to face can help a lot so check to see if you have any Local Macmillan Support Groups in your area or a Maggie’s Centre as these folks are amazing.
When you feel up to it try putting some information in your profile. This really helps others when answering. It also means that you don't have to keep repeating yourself. Just click on YOUR username, select 'Edit Profile'. Put as much or as little in your profile and you can amend it at any time - you can see members profiles by hitting our forum names.
All the very best.
