Need some advise please

FormerMember
FormerMember
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My husband has had 3 rounds of chemo for small bowel cancer. His latest scan showed it had spread to his lungs. The consultant advised on stopping treatment for 6/7 weeks then have another scan and reassess the situation.

His scan is due 12th July and consultation on 17th. I feel very isolated and abandoned at the moment

My husband has extreme fatigue no appetite and vomiting whenever he eats   I feel so useless and can see him waste away before my eyes.

when I ask and plead with him to see our GP he just replies that it’s fine and to leave him alone and stop fussing! 

I am afraid I am not doing enough to help. He seems to have given up and is very withdrawn

please advise as I don’t know what to do for the best

  • Hi  and welcome to the Online Community, although I am sorry to see you finding us. I am also so sorry to hear the issues you are having and how your husband is.

    First don’t beat yourself up, I am sure that you are doing as much as you can. It is so hard when someone just does not want to see a medical professional. At least he is seeing his team next week so make sure that you are there to highlight the problems you are facing.

    You may find our various Macmillan Support Line Services to be helpful - call them on 0808 808 00 00 This free service covers Emotional Support, Practical Information. Clinical Information, Financial Support and Work Guidance mostly open 8.00 to 8.00 but check the link.

    As my cancer journey was rather different you may like to follow these links to forums where you can connect with others supporting family and friends through their cancer journey: Carers Forum  and Friends and Family Forumwhere you will connect with people who understand the journey you are on. You can ask the folks questions including the challenges you are facing.

    Follow the link and join the group by hitting the ‘Join the Group’ tab just under the main group name. At this point select how you want to receive email notifications when someone answers your posts.

    You can either go to the 'Start a Discussion' tab just under the main group name. Set up your own Discussion and introduce yourself to the group - you could just copy an paste what you have in this first post. Or you could hit the ‘Discussions’ tab and look through the various threads.

    We do have lots of support groups that are Cancer specific  and also ones that are general Cancer experience  groups.

    We also have our ‘Ask an Expert’ section where you can post questions to our mostly Volunteer Experts but please allow 2 working days to get a reply.

    Talking to people face to face can help a lot so check to see if you have any Local Macmillan Support Groups in your area or a Maggie’s Centre as these folks are amazing.

    When you feel up to it try putting some information in your profile. This really helps others when answering. It also means that you don't have to keep repeating yourself. Just click on YOUR username, select 'Edit Profile'. Put as much or as little in your profile and you can amend it at any time - you can see members profiles by hitting our forum names.

    All the best.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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  • FormerMember
    FormerMember in reply to Thehighlander

    Thankyou for your speedy reply Blush  I will try the links you have suggested

    sorry just been having a stressful time today .

  • Totally understand, men can be so stubborn...... l always hope I was not but over my 20 years Cancer journey my wife was told that when I was having a pity me party that she had to show tough love and give me a shake....... as all the family go on the cancer journey ((hugs)) 

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • FormerMember
    FormerMember in reply to Thehighlander

    Oh my goodness, I know just how you feel. Last week my husband was so ill following round 4 of chemo he was hospitalised put on a fluid drip and anti sickness drip. He lost over half a stone in two days.It is so hard watching him fade before my eyes. He has been put on a six week 'break'. WHy do I feel this is ominous? I hope you are finding solace and support from somewhere 

  • Hi and welcome to the online community although I'm very sorry that you've had to find us.

    Thanks very much for completing your profile as it really helps others when answering any questions you might have and saves you having to keep typing everything out.

    Could I suggest that you join the carers group which is a safe and supportive place to discuss your worries and emotions.

    To join just click on the link I've created and then choose 'join this group' on the page that opens. You can then post a question or introduce yourself after selecting 'start a discussion' and respond to existing posts by clicking on 'reply'. 

    Sending a virtual ((hug))

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     "Never regret a day in your life, good days give you happiness, bad days give you experience"