Hi all I'm new here. My hubby was diagnosed with GBM 4 on 1st May and it was decided not to have surgery as this would only give him an extra two months so with the danger of what an op could do we thought quality over quantity of life was for him.
He's currently having radiotherapy and is on dexamethasone. He now has very swollen legs and feet and in one leg has cellulitis and vasculitis which is very painful. Just wondered if anyone else has had this problem with their leg.
Hi and welcome to the Online Community, although I am so sorry to see you having to find us. I also so sorry to hear about your husband. Any cancer diagnosis can bring a lot of stress on you and the family but talking with people who are on the same journey can help a lot and will reduce the whirlwind wind that is rushing in your head.
As my cancer journey was rather different it would be good to connect with others who understand, but I see that you have joined our Glioblastoma multiforme brain tumour forum. This is the best place for you you to connect with people who understand the journey your husband is on. You can ask the folks questions about treatments, what to expect and how to help him during this time.
Follow the link I have given and go to the 'Start a Discussion' tab just under the main group name. Set up your own Discussion and Introduce yourself to the group - you could just copy an paste what you have in this first post. Or you could hit the ‘Discussions’ tab and look through the various threads.
We also have these forums where you can connect with others supporting family and friends through their cancer journey: Carers Forum and Friends and Family Forum
You may find our various Macmillan Support Line Services to be helpful - call them on 0808 808 00 00 This free service covers Emotional Support, Practical Information. Clinical Information, Financial Support and Work Guidance mostly open 8.00 to 8.00 but check the link.
We also have our ‘Ask an Expert’section where you can post questions to our mostly Volunteer Experts but please allow 2 working days to get a reply.
Our Online Information and Support Section is a good place to find some great pages covering the cancer diagnosis, treatment and information pages covering most types of cancers.
Talking to people face to face can help a lot so check to see if you have any Local Macmillan Support Groups in your area or a Maggie’s Centre as these folks are amazing.
When you feel up to it think about putting some information in your profile. This really helps others when answering. It also means that you don't have to keep repeating yourself.
To do this click on YOUR username, look to the left and select 'Edit Profile'. Put as much or as little in your profile and you can amend it at any time - you can see members profiles by hitting our forum names.
All the best.
