DCIS

FormerMember
FormerMember
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Hi 

ive never actually posted on any forums before my first time and I’m looking for others who feel the same as myself.... I’m now post mastectomy and reconstruction dec 18 but feel like it’s still has a hold over me the anxiety the fear my husband and 2 children 3 and 8 keep me going but when alone I’m a mess!!!

cant talk to family or friends properly as I’m scared they will get fed up with me just feel so alone at times 

anyone ever feel this way??? 

  • Hi  and welcome to the Online Community, although I am so sorry to see you having to find us but you have found a safe place.

    So sorry to hear that you are struggling with the post treatment journey, what you are going through lots of folks can truly identify with. I have been on a 20 year journey with my type of Lymphoma and can say yes to having times like yourself.

    A few years back I was given this this great paper to have a look at and I often post it - folks will actually come back to me and say that they think that the paper was written just for them.

    As my cancer journey was rather different you may like to follow this link to our Breast cancer forum where you will connect with people who understand the journey you are on. You can ask the folks questions about how they get through the post treatment journey.

    Follow the link and join the group by hitting the ‘Join the Group’ tab just under the main group name. At this point select how you want to receive email notifications when someone answers your posts.

    The best way to get support is to go to the 'Start a Discussion' tab just under the main group name. Set up your own Discussion and Introduce yourself to the group - you could just copy an paste what you have in this first post. Or look through the various discussions by hitting the ‘Discussions’ tab in the group.

    We do have lots of support groups that cover general the Cancer experience - have a look through them.

    You may find our various Macmillan Support Line Services to be helpful - call them on 0808 808 00 00 This free service covers Emotional Support, Practical Information. Clinical Information, Financial Support and Work Guidance mostly open 8.00 to 8.00 but check the link.

    We also have our ‘Ask an Expert’ section where you can post questions to our mostly Volunteer Experts but please allow 2 working days to get a reply.

    Talking to people face to face can help a lot so check to see if you have any Local Macmillan Support Groups in your area or a Maggie’s Centre as these folks are amazing.

    When you feel up to it think about putting some information in your profile. This really helps others when answering. It also means that you don't have to keep repeating yourself.

    To do this click on YOUR username, look to the left and select 'Edit Profile'. Put as much or as little in your profile and you can amend it at any time - you can see members profiles by hitting our forum names.

    All the very best.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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