My Mum has ovarian cancer which is no longer being treated. She was being treated up to 8 weeks ago when a urine infection meant a hospital stay. She is now hone but is bedridden and no longer being treated. I am having trouble getting anyone to take me seriously and everyone seems to have written her off even though I think she would be a lot better of the fluid on her tummy could be drained and some physio onot her legs. Has anyone else experienced this 'washing their hands of' and how did you resolve. Sorry if I have not written this very eloquently but hard to explain. Any advice appreciated.
Hi and welcome to the Online Community, although I am so sorry to see you having to find us.
I am also so sorry to hear about your mum and the issues and confusion you are having. This must be a hard time for all the family. From my long experience as a cancer patient, although never feeling that my team had washed their hands of me - you do need at times to be your own advocate or someone has to do it for you. So you do need to get your pointy elbows into the system and make contact with her GP and/or her hospital team so that you can get answers to the issues your mum is having.
As my cancer journey was rather different but you may like to follow these links to our forums where you can connect with others supporting family and friends through their cancer journey: Carers Forum and Friends and Family Forum
Follow the link and join the group by hitting the ‘Join the Group’ tab just under the main group name. At this point go to the right on the group home page and select how you want to receive email notifications when someone answers your posts.
The best way to get support is to go to the 'Start a Discussion' tab just under the main group name. Set up your own Discussion and Introduce yourself to the group - you could just copy an paste what you have in this first post.
We do have lots of support groups that are Cancer specific and also ones that are general Cancer experience groups.
You may find our various Macmillan Support Line Services to be helpful - call them on 0808 808 00 00 This free service covers Emotional Support, Practical Information. Clinical Information, Financial Support and Work Guidance mostly open 8.00 to 8.00 but check the link.
We also have our ‘Ask an Expert’ section where you can post questions to our mostly Volunteer Experts but please allow 2 working days to get a reply.
Our Online Information and Support Sectionis a good place to find some great pages covering the cancer diagnosis, treatment and information pages covering most types of cancers.
When you feel up to it think about putting some information in your profile. This really helps others when answering. It also means that you don't have to keep repeating yourself.
To do this click on YOUR username, look to the left and select 'Edit Profile'. Put as much or as little in your profile and you can amend it at any time - you can see members profiles by hitting our forum names.
All the very best.
