Hello everyone
I am new to the community.
I was diagnosed with cancer of the voice box just over a week ago. It came like a sledge hammer to my husband and I. I had suffered voice/throat problems for a good 8 months, but didn't think it would result in finding this small cancer in the base of my throat box.
I am going in for my operation on the 21st June 2019. saw the consultant and team, and lots of others at the hospital yesterday and learned what would happen in the operation and afterwards. What I will look like too, so that I don't freak out when I see myself in the mirror for the first time.
It will be good to be part of this community and to find out how other people cope with this life changing event.
thank you for being there
Hi and a very warm welcome to the online community although I'm very sorry that you've had to find us.
I'm not surprised that you feel that you've been hit by a sledge hammer. Although I didn't have your type of cancer I remember only too well how numb I felt when I was told.
It's good that you don't have to wait too long for your operation and that you've received a lot of information and support from your hospital team.
Could I point you towards two groups that you might like to join. The first is specifically for larynx cancer and the second is the busier head and neck cancer group, which also covers larynx cancer.
To join either or both of these groups just click on the links I've created and then choose 'join this group' on the pages that open. You can then introduce yourself or ask a question by selecting 'start a discussion' and respond to existing posts by selecting 'reply'.
Thanks you very much for completing your profile as it really helps others when replying to you. You can update it at anytime so that it reflects where you are in your journey.
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
Hi and welcome to the Online Community, although I am so sorry to see the circumstance that brought you here and so sorry to hear you have been diagnosed with cancer in the voice box.
Talking with people who are on the same journey will help a lot and will help reduce the whirlwind wind that is rushing in your head.
My cancer journey was rather different you may like to follow this link to our Head and neck cancer Forum where you will connect with people who understand the journey you are on. You can ask the folks questions about treatments, what to expect and be a Support during this time.
Follow the link and join the group. To do this hit the ‘Join the Group’ tab just under the main group name. At this point go to the right on the group home page and select how you want to receive email notifications when someone answers your posts. If in the future you don’t want to receive notifications just switch off the email notifications tab.
The best way to get support is to go to the 'Start a Discussion' tab just under the main group name. Set up your own Discussion and Introduce yourself to the group - you could just copy an paste what you have in this first post.
Have a look through our various Macmillan Support Line Services then call them on 0808 808 00 00 to be very helpful covering Emotional Support and Practical Information. Clinical Information and Financial Support and Work Guidance mostly open 8.00 to 8.00 but check the link.
We also have our Online Information and Support Section where you will find some great pages covering the cancer diagnosis, treatment and information pages covering most types of cancers.
Talking to people face to face can help a lot so check to see if you have any Local Macmillan Support Groups in your area or a Maggie’s Centre as these folks are amazing.
When you feel up to it thank about putting some information in your profile. This really helps others when answering. It also means that you don't have to keep repeating yourself.
To do this click on YOUR username, look to the left and select 'Edit Profile'. Put as much or as little in your profile and you can amend it at any time - REMEMBER hit the big green SAVE before you leave the page. If you're not sure what to write you can take a look at any members profiles by clicking on their username.
All the best.
