Hi, my mum was diagnosed with secondary liver cancer on the 1st of may, it has gone to far for any treatment to be given. Just wanted to know as much as I could about what we are going to go through in the next few weeks. Her tummy has distended from what we think is her liver swelling. she is eating and drinking small amounts and as yet is not in pain thankfully. We have all he right people coming in district nurse and st davids etc but wanting to know whats next. She has come off the steroids and they are not agreeing with her and we are all so devastatingly upset . Never been on anything like this before but the nights looking after mum are very quiet and im trying to find out as much as I can.
Hi
I am so sorry to hear about your mum. You must be devastated. I really hope you’ll be able to find some support and information here in the online community. It’s a place where people support each other and is good for those times when there’s no one around. There is always someone up here.
I’d like to point you to a number of groups to find help. First, there is the secondary liver cancer group
https://community.macmillan.org.uk/cancer_types/liver-secondary-cancer/
Then there’s a group specifically for people like you who are looking after someone with incurable cancer
https://community.macmillan.org.uk/cancer_experiences/nearing_the_end/
There is some information on the main Macmillan website on secondary liver cancer
https://www.macmillan.org.uk/information-and-support/liver-cancer-secondary
If you have specific medical questions you can use the ask a nurse section. One of the Macmillan nurses will get back to you in a day or two.
https://community.macmillan.org.uk/cancer_experiences/ask_the_expert/ask_a_nurse/discussions
I wish you all the best
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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