Diagnosis

FormerMember
FormerMember
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after having treatment for stage 2b cervical cancer last year I’ve just been told I have incurable nodules in both lungs.. 

I don’t know where to start telling my kids I have terminal cancer ?? 

  • FormerMember
    FormerMember

    Hi

    I am so sorry to hear your news. It sounds like you’re reeling from the shock and no wonder. You’ve come to the right place to talk to people who know what you’re going through. 

    First things first. It’s a horrible shock to hear “incurable” and it’s an easy leap to “terminal”. I remember hearing the same news over three years ago now. It took me a long time to understand that incurable doesn’t mean untreatable. I have had two rounds of chemo, some specialist radiotherapy and a biological therapy - all of which have kept me going. New treatments are coming along all the time and these days a new term is emerging: treatable but not curable cancer. It’s all about living with cancer, not dying from it  

    Do you know if there is a treatment plan for you? 

    Can I ask how old the kids are? What you say will depend on their ages. Mine are 15 and 18 and one of my first questions on hearing my diagnosis was “what do I tell the kids”. I am very open with them. I know their imaginations will fill in with things much worse than the truth if I don’t. It’s important that they trust me to tell them the truth. 

    There is lots of info out there on how to handle talking to children and I’ll gladly dig it up for you - but it could well be that your kids are adults. 

    If you want to chat with people who are living with incurable cancer, I can recommend joining this group 

    https://community.macmillan.org.uk/cancer_experiences/living_with_incurable_cancer/

    It’s not all doom and gloom, honest. We share experiences and keep each other cheerful. 

    I can imagine you are feeling overwhelmed right now. Just remember to breathe and that you won’t always feel like this