Hi
rchop chemotherapy started last week for large diffuse B cell lymphoma.9cm mediastinal mass found in March along with spread to lymph nodes and spleen stage3 with b symptoms present. ( weight loss, night sweats, fatigue)Also svc obstruction due to mass pressing of access (superior vena cava) this was causing visual disturbances pressure in the head, swollen head neck and upper body. Meaning my partner can only sleep upright and has done for 3 months now. This has also caused my husband to faint.
a infection on the lungs on Sunday after chemo led to a scan showing that the mass has significantly grown since April despite prednisolone daily for a few months ( partner had 2 failed biopsies both ct guided and ebus.
The scan shows the increased size of the mass no means that the svc is now completed squashed/compromised and also has a large blood clot completed blocking the other side too. It also shows fluid around the heart which is also now due to the size of the mass that has grown bigger. We do not have a measurement for the new mass size unfortunately.
a histology report for holiday insurance however gives a diagnosis of ebv+ large diffuse B cell non Hodgkin lymphoma. The ebv + has never been mentioned to us. Does this change prognosis? Had anyone else had this? Does anyone know of any trials for this particular aggressive form of lymphoma?
Thank you in advance
Hi , I gave you a reply on your first New to Community post - go have a look.
